#ScienceSaturday: October 8, 2022

#ScienceSaturday: October 8, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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#ScienceSaturday: October 1, 2022

#ScienceSaturday: October 1, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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September 2022 Highlights

September 2022 Highlights

As this month comes to an end, we look ahead into the last few months of 2022 with hope, enthusiasm, and drive. You can join us by catching up on our mission-focused and community-driven progress right here in this Monthly Momentum. Also, be sure to mark your calendars for 2023’s in-person KAND Family & Scientific…

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#ScienceSaturday: September 24, 2022

#ScienceSaturday: September 24, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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#ScienceSaturday: September 17, 2022

#ScienceSaturday: September 17, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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2022 KAND Post-Conference Q&A

2022 KAND Post-Conference Q&A

You asked so many great questions at our 2022 KAND Family & Scientific Engagement Conference. While we didn’t have time to address every question at the conference, we’ve compiled our answers here for your convenience.

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#ScienceSaturday: September 10, 2022

#ScienceSaturday: September 10, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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Traveling with Disabilities: Tips from a KIF1A Mom and Travel Pro

Traveling with Disabilities: Tips from a KIF1A Mom and Travel Pro

Whether you’re planning a trip to New York City to participate in the KOALA Study at Columbia University or you’re going on vacation, traveling can be a daunting process. In this guest blog post, Charisma Freeman—mother to KIF1A superhero Cam, author, care coach, and more—shares her tips on traveling with disabilities.

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#ScienceSaturday: September 3, 2022

#ScienceSaturday: September 3, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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August 2022 Highlights

August 2022 Highlights

This month we gathered our community at the 2022 KAND Family & Scientific Engagement Conference to share updates, connect, and learn from one another. In August’s Monthly Momentum newsletter, catch up on conference presentations, meet core members of the KIF1A Research Network, and learn about new resources and opportunities with KIF1A.ORG!

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