Welcome to the submission page for KIF1A.ORG’s social media campaigns. Your submissions help us create effective content to share with the public and raise awareness of KAND and our mission to find treatment and a cure for all warriors. See the explanations of each campaign listed below.

Thank you for your contributions!


The purpose of #WarriorWednesday is to celebrate a KAND patient, often showcasing a recent accomplishment or joyful moment. We love sharing the milestones, adventures, and lives of our relentless warriors!


The purpose of #ThisIsKIF1A is to showcase the struggles of KAND and provide a real-life snapshot of how KAND affects patients and families. Oftentimes these posts are submitted by caregivers, however, we welcome anyone to submit their story. Check out previous submissions here.  

KIF1A Day Dance Video or Picture

We are creating a ‘dance‘ video of our warriors for KIF1A Day on April 28th to share with the public and broader community to raise awareness and encourage donations to our org. Please submit a picture or video (preferred) of your warrior showing us what it means to them to ‘dance!’ If you want a song to play, we encourage you to use Fight Song, by Rachel Platten. Here is a link to her song on YouTube. https://www.youtube.com/watch?v=-a1qTzh16hY

Social Media Submission Form

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What social media campaign is this for?*

Drop files here or
Max. file size: 10 MB.
    Any people, other than the patient/caregiver, who appear in the video/photo must provide consent to their image being used. By uploading this video/photo you are confirming consent to from all individuals in uploaded media. Please get permission before uploading your media. Thank you.
    Caption writing tips: Keep it short, 5-7 sentences max. Write how you would speak. Describe why you chose the video/photo you did.
    THANK YOU for helping us raise awareness for KAND!