KIF1A.ORG is led by a small but mighty community of KIF1A parents and volunteers. Here, you will find opportunities that are currently available to help us advance our mission at KIF1A.ORG. What skills would you like to share with the KIF1A community? If you don’t see anything here, feel free to reach out to us at impact@kif1a.org and we’ll get in touch.
KIF1A.ORG hosts a biennial Family and Scientific Engagement Conference in Boston, Massachusetts. This multi-day hybrid event requires extensive coordination, collaboration, and volunteer support to execute successfully. We rely on volunteers at every stage—before, during, and after the conference. If you’re able to contribute your time and skills, please contact us at events@kif1a.org.
We are currently seeking a volunteer administrative assistant to support us with tasks such as calendar management, meeting coordination, record keeping, data entry, and correspondence.
The ideal candidate is someone who communicates effectively, is highly organized, can prioritize tasks, is technically proficient, works well both independently and as part of a team, is proactive, and has a positive attitude.
Estimated time per week: 5 hours
The social media manager plays a vital role in raising awareness about KIF1A.ORG and KAND, engaging our community, and supporting fundraising efforts through social media platforms such as Facebook, Instagram, X, LinkedIn, and possibly TikTok.
Key responsibilities include creating and managing content, such as educational posts, patient stories, event promotions, and visual content; fostering community engagement through interactive posts and prompt responses; and supporting campaigns and fundraising efforts with updates and calls to action.
The role involves coordinating with KIF1A.ORG leadership and committee members to align social media efforts with organizational goals.
Estimated volunteer time per week: 5 hours
The Grant Specialist at KIF1A.ORG plays a crucial role in securing funding by researching, applying for, and managing grants from various sources in coordination with the grant committee. Key responsibilities include identifying potential grant opportunities, preparing compelling proposals and budgets, collaborating with internal teams and funders, and ensuring compliance with grant requirements.
The role also involves developing a strategic funding plan, maintaining a grants database, and building relationships with funders.
Estimated time per week: 5 hours
This volunteer role is focused on organizing support group meetups with KAND families. To accomplish this the volunteer would plan and schedule the meetups, coordinate with participants, facilitate meeting, selecting topics for discussion, promote meeting, manage logistics like Zoom or power points, gathering feedback, adapting to the communities needs/wants, and following up with participants after the meetups as needed.
This role will be supported by the leadership team, until this volunteer(s) feel able to facilitate this independently.
Estimated time per week: 5 hours