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Adnexi: Ideal Collaborations to Develop Treatments & Cures
KIF1A.ORG Joins CZI Rare As One Network & Awarded $450,000 Grant
Humankind: Boys Beam as They Race Through the Hallways in Walkers
WBTV: Emily Cook Finds Her People at a New KIF1A Conference
The Story Collider: Power of Patients: Stories About Taking Back the Narrative
El Pais: Tenemos 10 años para encontrar un tratamiento para la enfermedad rara de nuestro hijo
Spain News: Rare Disease Day: “We Have 10 Years to Find a Treatment for Our Child’s Rare Disease”
Post Independent: Glenwood Students Learn about “Rare Disease Day” from One of Their Own
Medium: Why We Need a Mouse
KSMU: Springfield Mom Works to Raise Awareness after Son Diagnosed with Rare Genetic Disorder
