Adnexi: Ideal Collaborations to Develop Treatments & Cures

KIF1A.ORG Joins CZI Rare As One Network & Awarded $450,000 Grant

Humankind: Boys Beam as They Race Through the Hallways in Walkers

WBTV: Emily Cook Finds Her People at a New KIF1A Conference

The Story Collider: Power of Patients: Stories About Taking Back the Narrative

El Pais: Tenemos 10 años para encontrar un tratamiento para la enfermedad rara de nuestro hijo

Spain News: Rare Disease Day: “We Have 10 Years to Find a Treatment for Our Child’s Rare Disease” 

Post Independent: Glenwood Students Learn about “Rare Disease Day” from One of Their Own

Medium: Why We Need a Mouse

KSMU: Springfield Mom Works to Raise Awareness after Son Diagnosed with Rare Genetic Disorder

Coriell: Rare Disease Advocacy Groups: Forces for Hope

KIF1A.ORG Featured in Ken Burns Documentary, The Gene: An Intimate History

USA TODAY: Children with Rare Genetic Disease Find Comfort in this First-Ever Meeting

The Wall Street Journal: On the Way to a Rare-Disease Cure, Parents Tackle the High Price Tag of Research

The Mighty: The Day I chose Vulnerability When Asking for Help to Save the Lives of our ‘Rare’ Kids

CTV News Calgary: Families of Children with Rare Disorders Hope for Further Research Valley 6-Month-Old Suffering from Rare Neurological Disorder

TV6: Family Asks for Help to Find Treatment for Daughter’s Rare Genetic Disorder

Kvalls Posten: Föräldrarnas oro för sjuka Eleonora