February 2021 Highlights

February 2021 Highlights

Special Edition! February 28th is Rare Disease Day! Check out this Monthly Momentum update from KIF1A.ORG to see what is happening around the world to spread awareness and recognize those living with a rare disease. We are gearing up for major success this year that is both mission-focused and community-driven. Our pathway to treatment is…

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#ScienceSaturday: February 20, 2021

#ScienceSaturday: February 20, 2021

#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.

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Kylie’s Superhero Story

Kylie’s Superhero Story

“Kylie is the brightest and purest of lights. She is so full of spunk, energy and determination. Kylie has a smile that lights up a room and everyone in it. She helps us find laughter and inspiration in every day moments both happy and challenging.”

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Local KIF1A Connections

Local KIF1A Connections

To date, roughly 300 individuals have been diagnosed worldwide with KIF1A Associated Neurological Disorder (KAND). These three families have three very important things in common: their children’s diagnosis, gene variant, and location!

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#ScienceSaturday: February 20, 2021

#ScienceSaturday: February 20, 2021

#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.

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#ScienceSaturday: February 13, 2021

#ScienceSaturday: February 13, 2021

#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.

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#ScienceSaturday: February 6, 2021

#ScienceSaturday: February 6, 2021

#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org. This week we have a very special edition…

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