#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
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“Our goal above all is to ensure that he has a full and happy life and knows every single day just how important, loved, and amazing he is. Caspar is our rock star and our superhero!”
Read More#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
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This month we honored our superheroes on KIF1A Day and launched new resources and initiatives to improve the lives of those affected by KAND and accelerate research to find a cure. Read this Monthly Momentum update to learn about our community’s progress in April as we strive for a brighter future for our superheroes.
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“Our Superhero Maddox brings joy to everyone he meets. His resilience is inspiring, his laughter is contagious, and his gentle heart makes him extremely lovable.”
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“Our little princess is a perfect example of happiness. She laughs a lot and never complains.”
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“In spite of his challenges, Beau remains a happy, outgoing, and loving little boy. He explores the world with curiosity and wonder.”
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“Gunnar’s big smile and even bigger heart, relentless determination to get up no matter how many times he falls, and refusal to let KIF1A keep him down make Gunnar unstoppable.”
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“She will allow no obstacle to stop her from accomplishing her goals and we are proud of her every day.”
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