Rylie’s Superhero Story

Rylie’s Superhero Story

“Rylie is independent, stubborn, silly, and of course the happiest! She loves making everyone around her smile, and feel loved. Her laugh is contagious, and she loves to share it with everyone.”

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Liam’s Superhero Story

Liam’s Superhero Story

“Through Liam, our family has learned how to come together in new ways and love even more than we thought we could. We have all had to learn how to live life with a special needs child and brother. What a gift and a blessing. We are thankful for Liam’s smile, laughter, and brilliance.”

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Malasia’s Superhero Story

Malasia’s Superhero Story

“Amidst the many struggles that she has endured in her young life, she continues working hard to attain the things that appear just out of reach, physically and figuratively. Her determination is one of her greatest strengths!”

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#ScienceSaturday: April 23, 2022

#ScienceSaturday: April 23, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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#ScienceSaturday: April 16, 2022

#ScienceSaturday: April 16, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section!

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#ScienceSaturday: April 9, 2022

#ScienceSaturday: April 9, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section!

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