“My only hope for Allen is that the world sees him as the superhuman that he is.”
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Kylie’s Superhero Story
“Kylie is the brightest and purest of lights. She is so full of spunk, energy and determination. Kylie has a smile that lights up a room and everyone in it. She helps us find laughter and inspiration in every day moments both happy and challenging.”
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Anderson’s Superhero Story
“Anderson is the personification of determination. He can charm anyone with this sweet, endearing grin, and his silliness never ceases.”
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Braden’s Superhero Story
“He is our warrior hero and the definition of perseverance!”
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Hoyt’s Superhero Story
“His big, toothy grin lights up a room, and his determination is nothing short of a warrior!”
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Local KIF1A Connections
To date, roughly 300 individuals have been diagnosed worldwide with KIF1A Associated Neurological Disorder (KAND). These three families have three very important things in common: their children’s diagnosis, gene variant, and location!
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#ScienceSaturday: February 20, 2021
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
Read More#ScienceSaturday: February 13, 2021
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
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#ScienceSaturday: February 6, 2021
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org. This week we have a very special edition…
Read More#ScienceSaturday: January 30, 2021
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
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January 2021 Highlights
Welcome to our newest initiative of 2021! We are gearing up for major success this year that is both mission-focused and community-driven. Our pathway to treatment is the compass leading the way. Join us each month as we spotlight our monthly momentum and impact!
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