Superhero Elena

Superhero Elena

“We really hope that someday there will be a treatment that can help stop the progression of the symptoms, and give Elena and us more years to enjoy together.”

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Summer’s Superhero Story

Summer’s Superhero Story

“We love her just as she is and could never imagine not having her with us. She completes our family in a quirky kind of way. We won’t ever stop fighting to get her well. I believe in miracles, and she is one.”

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Sophia’s Superhero Story

Sophia’s Superhero Story

“This inspiring and incredible girl works so hard every single day as do all the people who are by her side every minute of the day to help her through it. She loves to sing, chat, swim and above all do her best to crush her exercise goals…her favorite line is Exercise makes me happy!“

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Harrison’s Superhero Story

Harrison’s Superhero Story

“Harrison is the most amazing little boy who makes us all so proud everyday. He is very determined and independent, he loves school, absolutely loves the outdoors, and has a wonderful brother and sister who support him at all times.”

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Caspar’s Superhero Story

Caspar’s Superhero Story

“Our goal above all is to ensure that he has a full and happy life and knows every single day just how important, loved, and amazing he is. Caspar is our rock star and our superhero!”

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Gunnar’s Superhero Story

Gunnar’s Superhero Story

“Gunnar’s big smile and even bigger heart, relentless determination to get up no matter how many times he falls, and refusal to let KIF1A keep him down make Gunnar unstoppable.”

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