Ada’s Superhero Story

Ada’s Superhero Story

“She was diagnosed at one month old, via genetic testing, and only given and expectancy of ‘6months to 4yrs, but expect it to be closer to 18months or less’–we were devastated.”

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Emma’s Superhero Story

Emma’s Superhero Story

“We are beyond proud of how resilient Emma is and continues to be. Despite everything working against her, she is the happiest little girl that can brighten up any room with just her smile.”

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Ale’s Superhero Story

Ale’s Superhero Story

“We dream of being able to find in Italy the knowledge and trials that are available in the USA today. For this reason we decided to fund a KIF1A association also in Italy, in collaboration with other Italian parents.”

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Summer’s Superhero Story

Summer’s Superhero Story

“We love her just as she is and could never imagine not having her with us. She completes our family in a quirky kind of way. We won’t ever stop fighting to get her well. I believe in miracles, and she is one.”

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Sophia’s Superhero Story

Sophia’s Superhero Story

“This inspiring and incredible girl works so hard every single day as do all the people who are by her side every minute of the day to help her through it. She loves to sing, chat, swim and above all do her best to crush her exercise goals…her favorite line is Exercise makes me happy!“

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Harrison’s Superhero Story

Harrison’s Superhero Story

“Harrison is the most amazing little boy who makes us all so proud everyday. He is very determined and independent, he loves school, absolutely loves the outdoors, and has a wonderful brother and sister who support him at all times.”

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