Meet Valerie Morris, the Mom Behind Cure for Emmery Since her daughter Emmery’s diagnosis in 2022, Valerie Morris has turned her love for her little girl into action. Through her initiative, Cure for Emmery, she has organized multiple community fundraisers, including a silent auction and a golf event, with proceeds supporting KIF1A.ORG’s mission to drive…
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What does Policy and Advocacy look like in our KIF1A community? It means advocating for treatment development, improving access to care, federal funding, and healthcare services. It means engaging patients and families in legislative discussions and regulatory initiatives. It means empowering and shining a light on patient voices and experiences. We are a community of…
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