Please note….
All times are listed in Eastern time (either EDT or EST depending on the time of year).
- Eastern Daylight Time (EDT) is in use from the second Sunday in March to the first Sunday in November.
- Eastern Standard Time (EST) is used during the remainder of the year.
When registering for the Zoom link, the time shown should sync to your local time.
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Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, March 27, 2025 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, April 24, 2025 12:30 pm – 2:00 pm Easter Time Zone
Online via Zoom -
2nd Quarter Community Call, KIF1A.ORG
Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, May 14, 2025 1:00 pm – 2:30 pm Eastern Standard Time
Online via Zoom -
KOALA Study prior to KAND Conference
The KOALA study will be available to an estimated 40 KAND patients in the days leading up to the conference, on July 22, 23, and…
Tuesday, July 22, 2025 – Thursday, July 24, 2025 In-person
Boston, Massachusetts, USA -
2025 KAND Family & Scientific Engagement Conference
We’re excited to announce the official dates for our 2025 KAND Conference! Mark your calendars for July 25-26, 2025, and plan to join us in…
Friday, July 25, 2025 – Saturday, July 26, 2025 In-person and Virtual -
3rd Quarter Community Call, KIF1A.ORG
Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Thursday, August 28, 2025 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
4th Quarter Community Call, KIF1A.ORG
Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Thursday, November 13, 2025 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom