Please note….
All times are listed in Eastern time (either EDT or EST depending on the time of year).
- Eastern Daylight Time (EDT) is in use from the second Sunday in March to the first Sunday in November.
- Eastern Standard Time (EST) is used during the remainder of the year.
When registering for the Zoom link, the time shown should sync to your local time.
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Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, November 12, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Adults with KIF1A November Meeting: Barriers to Care and Services
This gathering is an opportunity for adults with KIF1A to connect with one another and discuss experiences with infection, illness, and how they intersect with…
Tuesday, November 17, 2026 2:00 pm – 3:00 pm https://us06web.zoom.us/meeting/register/FhTb71TnTfmfWW5sQWapwg#/registration -
4th Quarter Community Call, KIF1A.ORG – Dr. Wendy Chung and Boston Children’s Hosptal
Join us for KIF1A.ORG’s Q4 Community Call on Wednesday, November 18 at 2:00 PM ET. During this one-hour session, Dr. Wendy Chung and her team…
Wednesday, November 18, 2026 2:00 pm – 3:00 pm Eastern Time Zone
Online via Zoom -
KIF1A.ORG On The Hill! Virtual Hill Week 2026
By popular demand, KIF1A.ORG Virtual Hill Week is back! After a successful first year in 2025, we’re bringing this advocacy opportunity back for 2026. We’ll…
Monday, December 7, 2026 – Friday, December 11, 2026 Virtual -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Friday, December 11, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Adults with KIF1A December Meeting: Adult and VUS Survey Results
This gathering is an opportunity for adults with KIF1A to connect with one another and discuss experiences with infection, illness, and how they intersect with…
Tuesday, December 15, 2026 2:00 pm – 3:00 pm https://us06web.zoom.us/meeting/register/FhTb71TnTfmfWW5sQWapwg#/registration -
2026 in Review: Community, Science, and What’s Next for KIF1A
Join KIF1A.ORG Executive Director and Chief Science Officer for a look back at the past year and a look ahead to what’s next. They will…
Wednesday, December 16, 2026 2:00 pm – 3:00 pm https://us06web.zoom.us/meeting/register/1OSv3JZJShKLcSvQgYBw1A -
2027 KIF1A Family and Scientific Engagement Conference
Mark your calendars! We’re excited to announce that the 2027 KIF1A Family & Scientific Engagement Conference will take place July 22–24, 2027. We are thrilled…
Thursday, July 22, 2027 – Saturday, July 24, 2027 Sheraton Boston Hotel
39 Dalton St.
Boston, MA