Please note….

All times are listed in Eastern time (either EDT or EST depending on the time of year).

When registering for the Zoom link, the time shown should sync to your local time.

  • KIF1A Day 2026

    April 28, 2026 is KIF1A Day! Every April 28th, we come together to honor our community on KIF1A Day—a day to celebrate our incredible patients and…

    Tuesday, April 28, 2026 Globally
  • 2nd Quarter Community Call, KIF1A.ORG

    Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…

    Wednesday, May 13, 2026 2:00 pm – 3:30 pm Eastern Time Zone
    Online via Zoom
  • Newly Diagnosed Meetup

    These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…

    Thursday, June 11, 2026 12:30 pm – 2:00 pm Eastern Time Zone
    Online via Zoom
  • Newly Diagnosed Meetup

    These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…

    Thursday, July 9, 2026 12:30 pm – 2:00 pm Eastern Time Zone
    Online via Zoom
  • Newly Diagnosed Meetup

    These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…

    Thursday, August 13, 2026 12:30 pm – 2:00 pm Eastern Time Zone
    Online via Zoom
  • 3rd Quarter Community Call, KIF1A.ORG

    Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…

    Wednesday, August 19, 2026 2:00 pm – 3:30 pm Eastern Time Zone
    Online via Zoom
  • Newly Diagnosed Meetup

    These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…

    Thursday, September 10, 2026 12:30 pm – 2:00 pm Eastern Time Zone
    Online via Zoom
  • Newly Diagnosed Meetup

    These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…

    Friday, October 9, 2026 12:30 pm – 2:00 pm Eastern Time Zone
    Online via Zoom
  • Newly Diagnosed Meetup

    These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…

    Thursday, November 12, 2026 12:30 pm – 2:00 pm Eastern Time Zone
    Online via Zoom
  • 4th Quarter Community Call, KIF1A.ORG

    Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…

    Wednesday, November 18, 2026 2:00 pm – 3:30 pm Eastern Time Zone
    Online via Zoom