KIF1A.ORG hosted the largest gathering of KIF1A families, researchers, clinicians and supporters at the KAND Family and Scientific Engagement Conference in New York City, August 16-17, 2019. Please visit our Conference page to learn more.

  • Rare Disease Day 2020

    Mark your calendars for February 29, 2020, and celebrate Rare Disease Day with KIF1A.ORG! Information coming soon.

    Saturday, February 29, 2020 Global Event
  • KIF1A Day 2020

    Mark your calendars for April 28, 2020, and celebrate KIF1A Day with KIF1A.ORG! Information coming soon.

    Tuesday, April 28, 2020 Global Event