Please note….
All times are listed in Eastern time (either EDT or EST depending on the time of year).
- Eastern Daylight Time (EDT) is in use from the second Sunday in March to the first Sunday in November.
- Eastern Standard Time (EST) is used during the remainder of the year.
When registering for the Zoom link, the time shown should sync to your local time.
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Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Wednesday, November 20, 2024 1:00 pm – 2:30 pm Online via Zoom -
KOALA Study prior to KAND Conference
The KOALA study will be available to an estimated 40 KAND patients in the days leading up to the conference, on July 22, 23, and…
Tuesday, July 22, 2025 – Thursday, July 24, 2025 In-person
Boston, Massachusetts, USA -
2025 KAND Family & Scientific Engagement Conference
We’re excited to announce the official dates for our 2025 KAND Conference! Mark your calendars for July 25-26, 2025, and plan to join us in…
Friday, July 25, 2025 – Saturday, July 26, 2025 In-person
Boston, Massachusetts, USA