Please note….
All times are listed in Eastern time (either EDT or EST depending on the time of year).
- Eastern Daylight Time (EDT) is in use from the second Sunday in March to the first Sunday in November.
- Eastern Standard Time (EST) is used during the remainder of the year.
When registering for the Zoom link, the time shown should sync to your local time.
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Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, October 15, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, November 12, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
4th Quarter Community Call, KIF1A.ORG – Dr. Wendy Chung
Join us for KIF1A.ORG’s Q4 Community Call on Wednesday, November 18 at 2:00 PM ET. During this one-hour session, Dr. Wendy Chung and her team…
Wednesday, November 18, 2026 2:00 pm – 3:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, December 10, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
2027 KIF1A Family and Scientific Engagement Conference
Mark your calendars! We’re excited to announce that the 2027 KIF1A Family & Scientific Engagement Conference will take place July 22–24, 2027. We are thrilled…
Thursday, July 22, 2027 – Saturday, July 24, 2027 Sheraton Boston Hotel
39 Dalton St.
Boston, MA