Please note….
All times are listed in Eastern time (either EDT or EST depending on the time of year).
- Eastern Daylight Time (EDT) is in use from the second Sunday in March to the first Sunday in November.
- Eastern Standard Time (EST) is used during the remainder of the year.
When registering for the Zoom link, the time shown should sync to your local time.
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3rd Quarter Community Call, KIF1A.ORG
Join us for a guided panel discussion exploring the interaction between KIF1A and mood, behavior, and emotion. Our panel of speakers will share perspectives and…
Wednesday, August 19, 2026 3:30 pm – 4:30 pm Eastern Time Zone
Online via Zoom -
Adults with KIF1A Meeting – Neuropathy and Neurological Symptoms
Join KIF1A.ORG and other KIF1A adults to discuss how you experience, and manage, peripheral neuropathy, temperature regulation, and other neurological symptoms.
Tuesday, August 25, 2026 1:00 pm – 2:00 pm https://us06web.zoom.us/meeting/register/FhTb71TnTfmfWW5sQWapwg -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, September 10, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, October 15, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, November 12, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
4th Quarter Community Call, KIF1A.ORG
Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, November 18, 2026 2:00 pm – 3:30 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, December 10, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
2027 KIF1A Family and Scientific Engagement Conference
Mark your calendars! We’re excited to announce that the 2027 KIF1A Family & Scientific Engagement Conference will take place July 22–24, 2027. We are thrilled…
Thursday, July 22, 2027 – Saturday, July 24, 2027 Sheraton Boston Hotel
39 Dalton St.
Boston, MA