Please note….

All times are listed in Eastern time (either EDT or EST depending on the time of year).

When registering for the Zoom link, the time shown should sync to your local time.

  • Newly Diagnosed Meetup

    These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…

    Wednesday, November 20, 2024 1:00 pm – 2:30 pm Online via Zoom
  • KOALA Study prior to KAND Conference

    The KOALA study will be available to an estimated 40 KAND patients in the days leading up to the conference, on July 22, 23, and…

    Tuesday, July 22, 2025 – Thursday, July 24, 2025 In-person
    Boston, Massachusetts, USA
  • 2025 KAND Family & Scientific Engagement Conference

    We’re excited to announce the official dates for our 2025 KAND Conference! Mark your calendars for July 25-26, 2025, and plan to join us in…

    Friday, July 25, 2025 – Saturday, July 26, 2025 In-person
    Boston, Massachusetts, USA