Please note….
All times are listed in Eastern time (either EDT or EST depending on the time of year).
- Eastern Daylight Time (EDT) is in use from the second Sunday in March to the first Sunday in November.
- Eastern Standard Time (EST) is used during the remainder of the year.
When registering for the Zoom link, the time shown should sync to your local time.
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KIF1A.ORG Research Roundtable – Structure to Patient Perspective, A Lifetime of Support
Celebrate KIF1A Week with KIF1A.ORG and join our second Research Roundtable of 2026! Led by KIF1A.ORG’s Chief Science Officer Dr. Dylan Verden, we will discuss…
Thursday, April 23, 2026 4:00 pm – 5:00 pm Zoom meeting -
2nd Quarter Community Call, KIF1A.ORG
Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, May 13, 2026 2:00 pm – 3:30 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, June 11, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, July 9, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, August 13, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
3rd Quarter Community Call, KIF1A.ORG
Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, August 19, 2026 2:00 pm – 3:30 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, September 10, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Friday, October 9, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, November 12, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
4th Quarter Community Call, KIF1A.ORG
Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, November 18, 2026 2:00 pm – 3:30 pm Eastern Time Zone
Online via Zoom