By popular demand, KIF1A.ORG Virtual Hill Week is back! After a successful first year in 2025, we’re bringing this advocacy opportunity back for 2026. We’ll connect KIF1A families with their local legislative offices to meet virtually with members of Congress and their staff and advocate for KIF1A-specific policy issues. A prep meeting beforehand led by KIF1A.ORG staff and volunteer policy experts will walk you through how the process works, the talking points we’ll cover, and how to craft your message.
This is a great way to dip your toes into policy and advocacy by making your story heard. If you’re a US-based family interested in participating, please email impact@kif1a.org with interest and associated your zip code. Once we’ve identified an interested group, we’ll reach out with next steps.