KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

KIF1A.ORG Featured in Ken Burns Documentary: The Gene

The KIF1A.ORG community was recently featured in “The Gene: An Intimate History”, a film about how scientists, doctors and patients are unlocking the power of science to diagnose and treat genetic diseases. Now more than ever, our world is looking to pioneers and innovators to accelerate scientific breakthroughs that will improve and save lives. Part One of The Gene highlights the relentless KIF1A.ORG community and our mission to find a cure for KAND. Visit our webpage to see a few exclusive clips!

Upcoming Events

  • 2022 KAND Conference

    We’re excited to gather the KIF1A.ORG community of patients, families, scientists, clinicians, biotech leaders, and supporters at the 2022 Virtual KAND Family & Scientific Engagement…

    Saturday, August 13, 2022 11:00 am - 6:00 pm Virtual
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Our Superheroes

Meet some of our superheroes battling KIF1A Associated Neurological Disorder. They're the bravest people we know.

KAND Conference

KAND Family & Scientific Engagement Conference

KIF1A.ORG hosted the largest gathering of KIF1A families, researchers, clinicians and supporters at the KAND Family & Scientific Engagement Conference on August 16–17, 2019, at Columbia University in New York City.

We are dedicated to making the latest KIF1A research and data freely and easily accessible. Visit our conference page to watch the presentations and other conference materials.

Our Impact

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$ 0 + raised to advance our mission
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On the Blog

#ScienceSaturday: July 2, 2022

#ScienceSaturday: July 2, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.

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June 2022 Highlights

June 2022 Highlights

Registration for the virtual 2022 KAND Family & Scientific Engagement Conference is now open! We invite you to join in on the excitement by ordering your conference t-shirt and exploring this month’s highlights to learn about the conference agenda and how to register, as well as other important reminders. 

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