April 28, 2026 is KIF1A Day! Every April 28th, we come together to honor our community on KIF1A Day—a day to celebrate our incredible patients and…
Tuesday, April 28, 2026 GloballyJoin us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, May 13, 2026 2:00 pm – 3:30 pm Eastern Time ZoneThese gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, June 11, 2026 12:30 pm – 2:00 pm Eastern Time Zone
What does Policy and Advocacy look like in our KIF1A community? It means advocating for treatment development, improving access to care, federal funding, and healthcare services. It means engaging patients and families in legislative discussions and regulatory initiatives. It means empowering and shining a light on patient voices and experiences. We are a community of…
Read More
Authored by KIF1A.ORG Volunteer Roberto Ogelman, PhD Heterogeneity in research When we talk about KIF1A-associated neurological disorder (KAND), it can be tempting to think of as a single condition with a single cause. But in reality, KAND is caused by a spectrum of changes, or mutations, to the KIF1A gene. These different mutations can lead…
Read More
