KIF1A Associated Neurological Disorder is a rare neurodegenerative disorder with a progressive course. Urgently supporting KIF1A research is critical to discovering a cure for KAND.
We look forward to hosting the largest gathering of KAND caregivers and researchers to date at the 2019 Family & Scientific Engagement Conference. Join us…
Friday, August 16, 2019 - Saturday, August 17, 2019 Roy and Diana Vagelos Education CenterTeam Abby is hosting a Trivia Night in St. Charles, Missouri on September 21, 2019, to benefit KIF1A.ORG. This superhero-themed event will feature prizes, a…
Saturday, September 21, 2019 6:00 pm - 9:00 pm St. Charles Borromeo David Dyer Memorial Center
Our upcoming conference is a free event that unites families, researchers and medical professionals to improve our understanding of KIF1A Associated Neurological Disorder, its variations, clinical care and the road to finding treatment and a cure.
Learn more about the conference and send us your registration.
By Charisma FreemanOriginally published May 13, 2019, in FOCUS + Fragile Kids ViewFinder Newsletter KIF1A mom Charisma reflects on the turmoil she experienced after learning her 7-year-old son had been misdiagnosed with cerebral palsy, and how she found strength in her new family—the KIF1A community—to fight for a brighter future.
Read More
Noah is an adventurous and resilient seven-year-old from Illinois, USA, and among the first children diagnosed with KIF1A Associated Neurological Disorder.
Read More
