KIF1A.ORG is excited to host the next KAND Family & Scientific Engagement Conference in New York at the TWA Hotel at the JFK Airport on August 3-6, 2023!
The KAND Conference will bring together patients, family members, researchers, clinicians, treatment developers, and friends of the KIF1A.ORG community. Our Keynote Speaker, Dr. Wendy Chung, will kick off the conference Saturday morning of August 5th by sharing updates on her amazing work with the Natural History and KOALA studies. Then we will move into clinical conversations, therapeutic discussions, and scientific updates for the duration of the conference.
Please note that the first half of our conference dates are reserved for KOALA study participation. This will be held August 3-5th for any KAND patient that wants to enroll.
KIF1A.ORG is excited to host the next KAND Family & Scientific Engagement Conference in New York at the TWA Hotel at the JFK Airport on…
Thursday, August 3, 2023 - Sunday, August 6, 2023 The TWA Hotel at New York's JFK AirportThe KIF1A.ORG community was recently featured in “The Gene: An Intimate History”, a film about how scientists, doctors and patients are unlocking the power of science to diagnose and treat genetic diseases. Now more than ever, our world is looking to pioneers and innovators to accelerate scientific breakthroughs that will improve and save lives. Part One of The Gene highlights the relentless KIF1A.ORG community and our mission to find a cure for KAND. Visit our webpage to see a few exclusive clips!
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