KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

KIF1A Associated Neurological Disorder

KIF1A Associated Neurological Disorder is a rare neurodegenerative disorder with a progressive course. Urgently supporting KIF1A research is critical to discovering a cure for KAND.

Upcoming Events

  • KAND Family & Scientific Engagement Conference

    We look forward to hosting the largest gathering of KAND caregivers and researchers to date at the 2019 Family & Scientific Engagement Conference. Join us…

    Friday, August 16, 2019 - Saturday, August 17, 2019 Roy and Diana Vagelos Education Center
    104 Haven Avenue
    New York City, NY
  • Mighty Abby Trivia Night to Benefit KIF1A.ORG

    Team Abby is hosting a Trivia Night in St. Charles, Missouri on September 21, 2019, to benefit KIF1A.ORG. This superhero-themed event will feature prizes, a…

    Saturday, September 21, 2019 6:00 pm - 9:00 pm St. Charles Borromeo David Dyer Memorial Center
    534 North 5th Street
    St. Charles, MO
View All Upcoming Events ›

Our Superheroes

Meet some of our superheroes battling KIF1A Associated Neurological Disorder. They're the bravest people we know.

Attend the KAND Conference

KAND Family & Scientific Engagement Conference

Our upcoming conference is a free event that unites families, researchers and medical professionals to improve our understanding of KIF1A Associated Neurological Disorder, its variations, clinical care and the road to finding treatment and a cure.

Learn more about the conference and send us your registration.

Our Impact

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$ 0 + raised to accelerate research
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On the Blog

Today Is A Good Day

Today Is A Good Day

By Charisma FreemanOriginally published May 13, 2019, in FOCUS + Fragile Kids ViewFinder Newsletter KIF1A mom Charisma reflects on the turmoil she experienced after learning her 7-year-old son had been misdiagnosed with cerebral palsy, and how she found strength in her new family—the KIF1A community—to fight for a brighter future.

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