Jaybriel is a KIF1A superhero from California, USA. His family says “he is our superhero because he has the power to bring out the best in people everyday.”
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KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.
KIF1A Associated Neurological Disorder
KIF1A Associated Neurological Disorder is a rare neurodegenerative disorder with a progressive course. Urgently supporting KIF1A research is critical to discovering a cure for KAND.
Upcoming Events
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KAND Family & Scientific Engagement Conference
We look forward to hosting the largest gathering of KAND caregivers and researchers to date at the KAND Family & Scientific Engagement Conference. Through the…
Friday, August 16, 2019 - Saturday, August 17, 2019 Roy and Diana Vagelos Education Center
104 Haven Avenue
New York City, NY -
Mighty Abby Trivia Night to Benefit KIF1A.ORG
Team Abby is hosting a Trivia Night in St. Charles, Missouri on September 21, 2019, to benefit KIF1A.ORG. This superhero-themed event will feature prizes, a…
Saturday, September 21, 2019 6:00 pm - 9:00 pm St. Charles Borromeo David Dyer Memorial Center
534 North 5th Street
St. Charles, MO
Attend the KAND Conference
Our upcoming conference is a free event that unites families, researchers and medical professionals to improve our understanding of KIF1A Associated Neurological Disorder, its variations, clinical care and the road to finding treatment and a cure.
Learn more about the conference and send us your registration.
Our Impact
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people diagnosed with KAND
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On the Blog
Abby’s Superhero Story
Abby is a loving and determined two-year-old from Missouri, USA, who was diagnosed with KIF1A Associated Neurological Disorder in January 2019.
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