Happy September from the KIF1A.ORG team! Thank you all for reading about what we’ve been up to this month, including:
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KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.
Our Impact
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people diagnosed with KAND
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Research Network Members
Hope Starts Here: Murdoch Children’s Research Institute
Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.
Upcoming Events
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Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, October 15, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Adults with KIF1A October Meeting: Infection/Illness and KIF1A symptoms
This gathering is an opportunity for adults with KIF1A to connect with one another and discuss experiences with infection, illness, and how they intersect with…
Tuesday, October 20, 2026 2:00 pm – 3:00 pm https://us06web.zoom.us/meeting/register/FhTb71TnTfmfWW5sQWapwg -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, November 12, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom
On the Blog
August Monthly Momentum
Happy August from the KIF1A.ORG team! Thank you all for reading about what we’ve been up to this month, including: Introducing: KIF1A.ORG Community Question of the Month! This month marks the launch of KIF1A.ORG Question of the Month and we want to hear from you! Your voice helps us better understand and support the community…
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