KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

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Our Impact

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Hope Starts Here: Murdoch Children’s Research Institute

Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.

Watch Documentary Here

Upcoming Events

Sep 10

Newly Diagnosed Meetup

These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, September 10, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom
Sep 22

Adults with KIF1A – September Meeting

Join KIF1A.ORG and other KIF1A adults to discuss how your experience with, and management of, KIF1A symptoms.
Tuesday, September 22, 2026 1:00 pm – 2:00 pm https://us06web.zoom.us/meeting/register/FhTb71TnTfmfWW5sQWapwg
Oct 15

Newly Diagnosed Meetup

These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, October 15, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom

View All Upcoming Events ›

Our Superheroes

Meet some of our superheroes battling KIF1A Associated Neurological Disorder. They’re the bravest people we know.

On the Blog

Monthly Momentum

Happy August from the KIF1A.ORG team! Thank you all for reading about what we’ve been up to this month, including: Introducing: KIF1A.ORG Community Question of the Month! This month marks the launch of KIF1A.ORG Question of the Month and we want to hear from you! Your voice helps us better understand and support the community…