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KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.
Our Impact
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people diagnosed with KAND
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Research Network Members
Hope Starts Here: Murdoch Children’s Research Institute
Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.
Upcoming Events
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Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, August 13, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
3rd Quarter Community Call, KIF1A.ORG
Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, August 19, 2026 2:00 pm – 3:30 pm Eastern Time Zone
Online via Zoom -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, September 10, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom
On the Blog
June Monthly Momentum
Happy June from KIF1A.ORG! Thank you all for reading about what we’ve been up to this month, including: 💛 Gia’s Closet 💛 Established At Boston Children’s Hospital for KIF1A Families We are incredibly proud to announce and support the launch of Gia’s Closet at Boston Children’s Hospital. Gia’s Closet will be a dedicated space filled…
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