KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

KIF1A.ORG Featured in Ken Burns Documentary: The Gene

The KIF1A.ORG community was recently featured in “The Gene: An Intimate History”, a film about how scientists, doctors and patients are unlocking the power of science to diagnose and treat genetic diseases. Now more than ever, our world is looking to pioneers and innovators to accelerate scientific breakthroughs that will improve and save lives. Part One of The Gene highlights the relentless KIF1A.ORG community and our mission to find a cure for KAND. Visit our webpage to see a few exclusive clips!

Our Superheroes

Meet some of our superheroes battling KIF1A Associated Neurological Disorder. They're the bravest people we know.

KAND Conference

KAND Family & Scientific Engagement Conference

KIF1A.ORG hosted the largest gathering of KIF1A families, researchers, clinicians and supporters at the KAND Family & Scientific Engagement Conference on August 16–17, 2019, at Columbia University in New York City.

We are dedicated to making the latest KIF1A research and data freely and easily accessible. Visit our conference page to watch the presentations and other conference materials.

Our Impact

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On the Blog

#ScienceSaturday: May 15, 2021

#ScienceSaturday: May 15, 2021

#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.

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Good Dogg Beverage Partners with KIF1A.ORG to Support Our Mission

Good Dogg Beverage Partners with KIF1A.ORG to Support Our Mission

KIF1A.ORG Community, We are excited to introduce you to Good Dogg Beverage, a new philanthropic company that makes premium hard seltzer to support causes they care about, like KIF1A.ORG. As a purpose-driven company, Good Dogg Beverage is a rare hard seltzer maker that stands out from the rest. Their goal is to make a positive…

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