KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

2023 KAND Conference Presentations

The 2023 KAND Conference Presentations are ready for your viewing! Check them out to learn the most up-to-date data about KAND and hear directly from our patients, caregivers, clinicians, scientists, and researchers themselves!

Thank you to everyone who made this conference possible.

With hope,



Our Superheroes

Meet some of our superheroes battling KIF1A Associated Neurological Disorder. They're the bravest people we know.

KIF1A.ORG Featured in Ken Burns Documentary: The Gene

The KIF1A.ORG community was recently featured in “The Gene: An Intimate History”, a film about how scientists, doctors and patients are unlocking the power of science to diagnose and treat genetic diseases. Now more than ever, our world is looking to pioneers and innovators to accelerate scientific breakthroughs that will improve and save lives. Part One of The Gene highlights the relentless KIF1A.ORG community and our mission to find a cure for KAND. Visit our webpage to see a few exclusive clips!

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On the Blog

The Year (and a Half) in Review: 2022

The Year (and a Half) in Review: 2022

What a year! As families, scientists, doctors and our friends around the world navigated the challenges of 2022, the KIF1A.ORG community worked together to reach new heights. As this community grows, so does our army of advocates and supporters. We are so excited to highlight our proudest achievements and what refuels and restores our drive…

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#ScienceSaturday: September 23, 2023

#ScienceSaturday: September 23, 2023

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dylan Verden of KIF1A.ORG summarizes newly published KIF1A-related research and highlights progress in rare disease research and therapeutic development. KIF1A-Related Research RAB3 phosphorylation by pathogenic LRRK2 impairs trafficking of synaptic vesicle precursors During the COVID-19 epidemic many of us…

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