These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, April 9, 2026 12:30 pm – 2:00 pm Eastern Time ZoneJoin us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, May 13, 2026 2:00 pm – 3:30 pm Eastern Time ZoneThese gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, May 14, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Jeremiah was diagnosed with KIF1A Associated Neurological Disorder (KAND) in 2022 after multiple surgeries and several medical providers recommended genetic testing. To those who know and love him, Jeremiah is best known for his sense of humor, his prankster personality, and his love of good music and good food. He has a way of keeping…
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Updates From KIF1A.ORG Happy Rare Disease Day from all of us at KIF1A.ORG! Today, we join the global community in honoring Rare Disease Day—a day dedicated to raising awareness and shining a light on the millions of people affected by rare diseases. Here at KIF1A.ORG, we’ve been gearing up all month, and the momentum is building!…
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