Happy September from the KIF1A.ORG team! Thank you all for reading about what we’ve been up to this month, including:
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KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.
Our Impact
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people diagnosed with KAND
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Research Network Members
Hope Starts Here: Murdoch Children’s Research Institute
Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.
Upcoming Events
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Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, October 15, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom -
Adults with KIF1A October Meeting: Infection/Illness and KIF1A symptoms
Dylan Verden, KIF1A.ORG is inviting you to a scheduled Zoom meeting.Join Zoom Meetinghttps://us06web.zoom.us/meeting/register/FhTb71TnTfmfWW5sQWapwg Meeting chat linkhttps://us06web.zoom.us/launch/jc/82653401431 Meeting ID: 826 5340 1431 — One tap mobile+19292056099,,82653401431#…
Tuesday, October 20, 2026 2:00 pm – 3:00 pm https://us06web.zoom.us/meeting/register/FhTb71TnTfmfWW5sQWapwg -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, November 12, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Online via Zoom
On the Blog
August Monthly Momentum
Happy August from the KIF1A.ORG team! Thank you all for reading about what we’ve been up to this month, including: Introducing: KIF1A.ORG Community Question of the Month! This month marks the launch of KIF1A.ORG Question of the Month and we want to hear from you! Your voice helps us better understand and support the community…
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