KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

KIF1A.ORG Featured in Ken Burns Documentary: The Gene

The KIF1A.ORG community was recently featured in “The Gene: An Intimate History”, a film about how scientists, doctors and patients are unlocking the power of science to diagnose and treat genetic diseases. Now more than ever, our world is looking to pioneers and innovators to accelerate scientific breakthroughs that will improve and save lives. Part One of The Gene highlights the relentless KIF1A.ORG community and our mission to find a cure for KAND. Visit our webpage to see a few exclusive clips!

Our Superheroes

Meet some of our superheroes battling KIF1A Associated Neurological Disorder. They're the bravest people we know.

KAND Conference

KAND Family & Scientific Engagement Conference

KIF1A.ORG hosted the largest gathering of KIF1A families, researchers, clinicians and supporters at the KAND Family & Scientific Engagement Conference on August 16–17, 2019, at Columbia University in New York City.

We are dedicated to making the latest KIF1A research and data freely and easily accessible. Visit our conference page to watch the presentations and other conference materials.

Our Impact

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On the Blog

Meet the 2021 KIF1A.ORG Mini Grant Recipients!

Meet the 2021 KIF1A.ORG Mini Grant Recipients!

Dear KIF1A.ORG Community, Small roadblocks should never halt therapeutic discovery. That’s why we created KIF1A.ORG’s Mini Grant initiative to support smaller direct project expenses that can accelerate our path to treatments for KIF1A Associated Neurological Disorder. In 2021, we awarded three mini grants for the following novel projects led by members of our Research Network. Learn…

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KIF1A.ORG Welcomes Dr. Dylan Verden to the Team

KIF1A.ORG Welcomes Dr. Dylan Verden to the Team

Dear KIF1A.ORG Community, Please help me extend a warm welcome to Dr. Dylan Verden, KIF1A.ORG’s new Research Engagement Director! Dr. Verden will be a driving force of KIF1A.ORG’s efforts to engage our diverse community of stakeholders—spanning from patients and caregivers to clinicians and scientists—who are working relentlessly to accelerate the path to treatments for KIF1A…

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