Members of Congress, We are waiting for NIH funding, but our children who are battling a rare neurodegenerative disorder are running out of time. The continuing resolution that the NIH is currently operating under harms the rare disease community by blocking critical funding for scientific research. We need you to pass a full-year budget that…Read More
KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.
KIF1A Associated Neurological Disorder
KIF1A Associated Neurological Disorder is a rare neurodegenerative disorder with a progressive course. Urgently supporting KIF1A research is critical to discovering a cure for KAND.
Mark your calendars for February 29, 2020, and celebrate Rare Disease Day with KIF1A.ORG! Information coming soon.Saturday, February 29, 2020 Global Event
Mark your calendars for April 28, 2020, and celebrate KIF1A Day with KIF1A.ORG! Information coming soon.Tuesday, April 28, 2020 Global Event
Attend the KAND Conference
KIF1A.ORG hosted the largest gathering of KIF1A families, researchers, clinicians and supporters at the KAND Family & Scientific Engagement Conference on August 16–17, 2019, at Columbia University in New York City.
We are dedicated to making the latest KIF1A research and data freely and easily accessible. Visit our conference page to watch the presentations and other conference materials.
On the Blog
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community, and are compiled by Alejandro Doval. Alejandro is from Spain and serves as Team Leader of the KIF1A.ORG parent-led Research Engagement Team. Send news suggestions to our team at firstname.lastname@example.org. KIF1A-Related Research Tracking Down the Fast and Superprocessive KIF1A with Gold Scattering Microscopy Dr. Allison Gicking…Read More
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community, and are compiled by Alejandro Doval. Alejandro is from Spain and serves as Team Leader of the KIF1A.ORG parent-led Research Engagement Team. Send news suggestions to our team at email@example.com. What Is KIF1A? Has your family recently received a KIF1A diagnosis? You’ve likely entered a whole…Read More