Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, June 11, 2026 12:30 pm – 2:00 pm Eastern Time ZoneThese gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, July 9, 2026 12:30 pm – 2:00 pm Eastern Time ZoneThese gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, August 13, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Happy May from KIF1A.ORG! Thank you all for reading about what we’ve been up to this month, including: KIF1A Global Documentary Available for Steaming NOW! It is with great honor and excitement we share that a NEW documentary centered around our KIF1A community has been released for viewing! Join journalist Benjamin Hall in “Hope Starts…
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It is with great enthusiasm that we announce a significant next step in our long-term partnership with the Chung Lab at Boston Children’s Hospital (BCH). In 2026, KIF1A.ORG will proudly contribute $250,000 USD to support the continuation of KIF1A clinical research in the Chung Lab. Our contribution to the Chung Lab represents a longstanding partnership…
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