These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, April 9, 2026 12:30 pm – 2:00 pm Eastern Time ZoneJoin us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…
Wednesday, May 13, 2026 2:00 pm – 3:30 pm Eastern Time ZoneThese gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, June 11, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Updates from KIF1A.ORG Happy March from KIF1A.ORG! Thank you all for reading about what we’ve been up to this month, including: Before you dive into March Monthly Momentum, please enjoy a new educational video for our community, made possible by our compassionate advocates and partners at Advarra. Welcome Our New Director of Development, Marcy Rubic!…
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Jeremiah was diagnosed with KIF1A Associated Neurological Disorder (KAND) in 2022 after multiple surgeries and several medical providers recommended genetic testing. To those who know and love him, Jeremiah is best known for his sense of humor, his prankster personality, and his love of good music and good food. He has a way of keeping…
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