KIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.

KIF1A Associated Neurological Disorder

KIF1A Associated Neurological Disorder is a rare neurodegenerative disorder with a progressive course. Urgently supporting KIF1A research is critical to discovering a cure for KAND.

Upcoming Events

  • Mighty Abby Trivia Night to Benefit KIF1A.ORG

    Team Abby is hosting a Trivia Night in St. Charles, Missouri on September 21, 2019, to benefit KIF1A.ORG. This superhero-themed event will feature prizes, a…

    Saturday, September 21, 2019 6:00 pm - 9:00 pm St. Charles Borromeo David Dyer Memorial Center
    534 North 5th Street
    St. Charles, MO
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Our Superheroes

Meet some of our superheroes battling KIF1A Associated Neurological Disorder. They're the bravest people we know.

Attend the KAND Conference

KAND Family & Scientific Engagement Conference

Our upcoming conference is a free event that unites families, researchers and medical professionals to improve our understanding of KIF1A Associated Neurological Disorder, its variations, clinical care and the road to finding treatment and a cure.

Learn more about the conference and send us your registration.

Our Impact

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$ 0 + raised to accelerate research
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On the Blog



We are proud to announce that KIF1A.ORG just concluded our first KAND Family & Scientific Engagement Conference at Columbia University Medical Center. Since 2017, our community has made great progress, and experienced incredible heartache. The search for a brighter future is why we are #relentless in our mission to urgently find treatment for our children and loved ones with KIF1A Associated Neurological…

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