Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.
Join us for a guided panel discussion exploring the interaction between KIF1A and mood, behavior, and emotion. Our panel of speakers will share perspectives and…
Wednesday, August 19, 2026 3:30 pm – 4:30 pm Eastern Time ZoneJoin KIF1A.ORG and other KIF1A adults to discuss how you experience, and manage, peripheral neuropathy, temperature regulation, and other neurological symptoms.
Tuesday, August 25, 2026 1:00 pm – 2:00 pm https://us06web.zoom.us/j/82653401431These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, September 10, 2026 12:30 pm – 2:00 pm Eastern Time Zone
Happy July from the KIF1A.ORG team! Thank you all for reading about what we’ve been up to this month, including: 📅 SAVE THE DATE: 2027 KIF1A Family and Scientific Engagement Conference We’re heading back to Boston for the 2027 KIF1A Family & Scientific Engagement Conference, taking place July 22–24, 2027, at the Sheraton Boston Hotel! Join…
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KAND researchers at the Murdoch Children’s Research Institute, led by Dr. Simranpreet Kaur, have taken a commitment to patient-centered research to heart. See how in their most recent impact update.
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