September was packed with informational meetings, grant submissions, global connections with scientists, impact reports, awards, and outstanding community fundraising achievements! Keep reading to discover these amazing milestones and learn how you can get involved to make an IMPACT too! UPCOMING MEETINGS *Times are Eastern Time Zone. MCRI Impact Report In 2020, we provided MCRI and…
Read MoreKIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.
Treatment Accelerator Program
Please be a hero to our superheroes and donate to our Treatment Accelerator Program fundraiser so we can test promising therapeutics for KAND!
We did it!
Upcoming Events
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KIF1A.ORG Dylan Verden Office Hours
These office hours provide an opportunity for you to bring any questions and discuss them in an open, informal setting. We encourage you to join…
Wednesday, October 16, 2024 2:00 pm – 3:00 pm https://us06web.zoom.us/j/82677389706 -
Newly Diagnosed Meetup
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Wednesday, October 23, 2024 1:00 pm – 2:30 pm Online via Zoom
Our Impact
On the Blog
August Monthly Momentum
Hello, amazing KAND Community! I know I might sound like a broken record, but we have SO MUCH exciting news and information to share this month! Here’s a sneak peek at what’s in store: Let’s dive in and explore all these wonderful updates together! UPCOMING MEETINGS *Times are Eastern Time Zone. ASO therapy: Positive Clinical…
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