Journalist Benjamin Hall follows three families battling KIF1A mutations as scientists at the Murdoch Children’s Research Institute race against time to develop treatments.
These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…
Thursday, November 12, 2026 12:30 pm – 2:00 pm Eastern Time ZoneThis gathering is an opportunity for adults with KIF1A to connect with one another and discuss experiences with infection, illness, and how they intersect with…
Tuesday, November 17, 2026 2:00 pm – 3:00 pm https://us06web.zoom.us/meeting/register/FhTb71TnTfmfWW5sQWapwg#/registrationJoin us for KIF1A.ORG’s Q4 Community Call on Wednesday, November 18 at 2:00 PM ET. During this one-hour session, Dr. Wendy Chung and her team…
Wednesday, November 18, 2026 2:00 pm – 3:00 pm Eastern Time Zone
Meet Valerie Morris, the Mom Behind Cure for Emmery Since her daughter Emmery’s diagnosis in 2022, Valerie Morris has turned her love for her little girl into action. Through her initiative, Cure for Emmery, she has organized multiple community fundraisers, including a silent auction and a golf event, with proceeds supporting KIF1A.ORG’s mission to drive…
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Happy September from the KIF1A.ORG team! Thank you all for reading about what we’ve been up to this month, including:
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