Sadie is a KIF1A superhero.
- Hometown: Negaunee, MI
- Age: Nearly 4
- All-Star Wrestler
- Total Superhero
A Note From Sadie’s Family
Sadie is a busy girl, despite being cortically blind and having low muscle tone (hypotonia). Her therapists describe Sadie as the most determined kid they have ever seen. She was diagnosed with KIF1A Associated Neurological Disorder shortly before her 2nd birthday.
Sadie’s recent accomplishments include saying her ABCs and playing “Name that Tune” with her favorite nursery rhymes! She is very motivated by food. Some of her favorite things to eat are berries, peanut butter, and chocolate milk.
Her favorite activity is wrestling and climbing. She specializes in a reverse-chokehold fake-out that starts as a hug. She loves music and her Fisher Price piano; when she wears her sunglasses her nickname is Sadie Wonder.
Sadie loves vigorous play, aggressive swinging, being upside-down, tickling, and eating raspberries!
GIVE A GIFT
KIF1A.ORG is dedicated to accelerating research to find a cure for superheroes like Sadie. You can help. Treatment is within reach, but there are two obstacles in our way: time and money. Give today to empower KIF1A families to achieve our mission for this generation of KIF1A superheroes.