Sadie is a KIF1A superhero.

  • Hometown: Negaunee, MI
  • Age: Nearly 4
  • All-Star Wrestler
  • Total Superhero

A Note From Sadie’s Family

Sadie is a busy girl, despite being cortically blind and having low muscle tone (hypotonia). Her therapists describe Sadie as the most determined kid they have ever seen. She was diagnosed with KIF1A Associated Neurological Disorder shortly before her 2nd birthday.

Sadie’s recent accomplishments include saying her ABCs and playing “Name that Tune” with her favorite nursery rhymes! She is very motivated by food. Some of her favorite things to eat are berries, peanut butter, and chocolate milk.

Her favorite activity is wrestling and climbing. She specializes in a reverse-chokehold fake-out that starts as a hug. She loves music and her Fisher Price piano; when she wears her sunglasses her nickname is Sadie Wonder.

Sadie loves vigorous play, aggressive swinging, being upside-down, tickling, and eating raspberries!



  1. 1
    Jan Frearson on May 5, 2019

    Not only is Sadie a Superhero, but so are her parents! What an amazing family!

  2. 2
    Millie Rodriguez on June 19, 2019

    You are amazing!

  3. 3
    Suzanne Healy on April 7, 2020

    Sadie is an Amazing little gIrl in an amazing family.

  4. 4
    Alexandra on May 21, 2021

    I am best friends with Sadies nanny and I just recently moved but before I did I got to be with Sadie multiple times a week! I miss wrestling, having dance parties, and laughing with her!!! She is amazing!

    1. 5
      Bianca Monarrez on May 28, 2022

      Sadie you are such an amazing Lil warrior as are the rest of the individuals and families living with KAND. I have started a fundraiser through Pampered Chef to give back 20% of all sales to KIF1A.ORG it’s open until June 6th
      Here is the link if anyone would like to participate

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