We are on an urgent mission to discover treatment for children affected by KIF1A Associated Neurological Disorder (KAND). Our team works rapidly to care for those diagnosed with mutations in KIF1A, and to accelerate vital research powered to find treatment for children living with KAND before time runs out.
Currently there are no approved treatments and no cure for KIF1A Associated Neurological Disorder, and the only relief for families is symptomatic. The goal of our research is to better understand the KIF1A gene, find treatment and ultimately cure the disorder.
KIF1A.ORG is the only group funding critical research. Our path to treatment is clear and we must act fast. The progressive nature of this neurodegenerative disorder has us racing against time to bring treatment to children living with KAND. We need your help.
KIF1A research is rapidly underway at the Chung Lab for Human Genetics and Precision Medicine at Boston Children’s Hospital. You can help KIF1A parents continue to power this life-saving research by making a donation to KIF1A.ORG.