On our urgent mission to find a cure for KIF1A Associated Neurological Disorder (KAND) we work to make life as comfortable as possible for every kid suffering from this disease. The goal of our research is to better understand the KIF1A gene, find treatment and ultimately cure the disorder.

We’ve only known about the KIF1A gene and KAND for a few years, and KIF1A.ORG is the only group funding research. The path to treatment is clear and we need to act fast. Due to the progressive nature of this disorder, we are in a race against time to discover treatment for kids with KAND.

KIF1A research is rapidly underway at the Chung Lab for Human Genetics and Precision Medicine at Columbia University. You can help KIF1A parents continue to power this life-saving research by making a donation to KIF1A.ORG.