KIF1A.ORG is a parent-led organization established in 2017 to launch the world’s first translational research program dedicated to discovering treatment for people affected by KIF1A Associated Neurological Disorder (KAND). There is no cure or treatment for this neurodegenerative disorder. Yet.
Our organization supports researchers who engage in collaborative and translational work to rapidly discover treatment for this generation of KAND patients. We have made tangible progress over the last three years, but time is running out. 2020 is a transformational year for KIF1A with a clear path to clinical trials.
This Path to Treatment outlines our immediate therapeutic strategy with defined objectives and resources needed to bring treatment options to families affected by KAND.
#StopTheClock on KAND
KAND families have a significant unmet therapeutic need. Our objective is to create global clinical trials & bring treatment to this generation of KAND patients. With increased resources, KIF1A researchers & clinicians will have the capacity to pursue, research & develop treatments for KAND before we lose any more children to this degenerative disease.