KIF1A.ORG is a parent-led organization established in 2017 to launch the world’s first translational research program dedicated to discovering treatment for people affected by KIF1A Associated Neurological Disorder (KAND). There is no cure or treatment for this neurodegenerative disorder. Yet.

Our organization supports researchers who engage in collaborative and translational work to rapidly discover treatment for this generation of KAND patients. We have made tangible progress over the last three years, but time is running out. 2020 is a transformational year for KIF1A with a clear path to clinical trials.

This Path to Treatment outlines our immediate therapeutic strategy with defined objectives and resources needed to bring treatment options to families affected by KAND.

View the Path to Treatment below or download it here. Questions? Want to join our mission? Contact us today.