Susannah is our sweet, caring and bold little girl. “Sus” has a significant movement disorder, seizures, and speech and vision challenges; none, however, can stop her from charming the world with her beautiful smile and sincere devotion to friends and family. Like her best friend/big brother says, “Sus just gets around differently.”
The kindest soul in the world, Susannah knows exactly when to give a friend a high five to brighten their day. Just when life starts to get us down, she wraps her strong arms around us for a signature “Ginormous Sus Hug.” Those hugs are perfect. Susannah inspires us to live life in the moment, to jump in the water, sing at the top of our lungs and laugh until it hurts.
It is terrifying to watch KIF1A steal away her steps, words and thoughts. Thank goodness she’s the toughest gal in the league. Thank goodness Susannah is our superhero.