A message from London’s family in New York, USA:
London is our beautiful and sassy little 7 year old girl with a BIG personality. London was diagnosed with KIF1A in 2022. It has been a journey and still is but nothing stops London from letting her personality shine. She’s definitely the Queen Bee! London loves music, school, tickles and when she can feel the wind blow. Her laugh captures your heart. Thanks to the KIF1A foundation there is finally more awareness about this condition and support for our loved ones. We continue to fight and so do our Superhero’s! London is so special and brings so much love, so many smiles and much laughter to our lives every day. We know the future is bright for our Superhero the more we can connect and raise awareness.
