Kylie’s Superhero Story

Kylie’s Superhero Story

“Kylie is the brightest and purest of lights. She is so full of spunk, energy and determination. Kylie has a smile that lights up a room and everyone in it. She helps us find laughter and inspiration in every day moments both happy and challenging.”

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Austin’s Superhero Story

Austin’s Superhero Story

Austin is a 5 year old superhero from Alberta. His family shares that “he has an amazing smile that lights up the room and he flashes it every time he hears a familiar voice.”

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Emily’s Superhero Story

Emily’s Superhero Story

Emily is a relentless KIF1A superhero from North Carolina. “She has a contagious smile and loves with her whole heart. She works very hard to stay strong while waiting for a treatment or cure for KIF1A.”

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Eugenia’s Superhero Story

Eugenia’s Superhero Story

“She knows about her condition, and when she feels frustrated because of pain or because she’s unable to do something, she says ‘I hate KIF1A!’ However, she has discovered a lot of friends ‘just like her’ through this community…”

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