“Even after countless therapy appointments, doctor appointments, procedures and surgeries, he takes on each day with his contagious smile and laughter.”
A Message from Brandon’s Family:
Brandon was diagnosed with KIF1A in January 2022 after doing genetic testing to help put together the pieces of his developmental delays and medical complexity. Hearing that your child has a degenerative disorder is gut wrenching and heartbreaking, but it has taught our family to make each and every day count. Despite all that Brandon has been through in his 4 years, he still continues to be his happy and silly self.
Even after countless therapy appointments, doctor appointments, procedures and surgeries, he takes on each day with his contagious smile and laughter. He doesn’t let daily obstacles get in his way, and he is just like every other little boy. He is obsessed with dinosaurs, monster trucks, and fishing. We hope and pray that our KIF1A teams find a cure so that Brandon and other kids with KIF1A never have to know what the word degenerative means and can live a long, pain free life.
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KIF1A.ORG is dedicated to accelerating research to find a cure for superheroes like Brandon. You can help. Treatment is within reach, but there are two obstacles in our way: time and money. Give today to empower KIF1A families to achieve our mission for this generation of KIF1A superheroes.