“His big, toothy grin lights up a room, and his determination is nothing short of a warrior!”
Read MoreAustin’s Superhero Story
Austin is a 5 year old superhero from Alberta. His family shares that “he has an amazing smile that lights up the room and he flashes it every time he hears a familiar voice.”
Read MoreBryce’s Superhero Story
“To know Bryce is to love him. His smile is contagious and his baby blue eyes will make your heart melt! We will never give up the fight for Bryce!”
Read MoreLamin’s Superhero Story
“He is our very special sunshine that brightens up every single day.”
Read MoreTurner’s Superhero Story
“We pray and hope for a cure for KIF1A and just know it is ‘when’ not ‘if.’”
Read MoreAlyssa’s Superhero Story
“We know that every single day counts and the sooner we find a treatment, the better it will be for Alyssa and all who are affected by KIF1A.”
Read MoreEmily’s Superhero Story
Emily is a relentless KIF1A superhero from North Carolina. “She has a contagious smile and loves with her whole heart. She works very hard to stay strong while waiting for a treatment or cure for KIF1A.”
Read MoreEugenia’s Superhero Story
“She knows about her condition, and when she feels frustrated because of pain or because she’s unable to do something, she says ‘I hate KIF1A!’ However, she has discovered a lot of friends ‘just like her’ through this community…”
Read MoreJames’ Superhero Story
James is a 22-year-old KIF1A superhero. His mom shares, “Treatment is so important because it can impact his quality of life as well as life itself for James and those impacted with this horrible disorder.”
Read MoreEleonora’s Superhero Story
A special, heartfelt message from Eleonora’s parents about their beloved superhero.
Read MoreHarlin’s Superhero Story
“The day he got his KIF1A diagnosis was the day I stopped thinking ‘I just want him to get to live a normal life’ and I started thinking ‘I just want him to live.’”
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