KIF1A Superhero Allen header

“My only hope for Allen is that the world sees him as the superhuman that he is.”

A message from Allen’s family:

My son, Allen, was diagnosed when he was 3. He had been in early intervention programs since he was 9 months old. He is a very strong willed and determined 3-year-old. He isn’t walking yet, but he wants to so badly. He gets frustrated that his body won’t do what he wants it to do. But, through all of that he is a goofy guy. Quick to give a smile and giggles to mommy, daddy and his younger sister. I’m proud of his determination. He has many hours of therapy a week on top of special needs preschool. So, he works very, very hard. It’s like he knows it’s meant to get his body to operate how he’s always wished it would.

My only hope for Allen is that the world sees him as the superhuman that he is. To not let his body’s limits be the end of the road for him. Right now we’re treating his symptoms and pray for a cure. His treatment is important because we’re proving that you can retrain the brain.

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