“He is our very special sunshine that brightens up every single day.”
A Message from Lamin’s Family:
Lamin was diagnosed with KIF1A half a year ago. His development is delayed. He can’t speak nor walk and his motor skills and balance are challenging him every single day. He falls a lot on his face while crawling around. Two days ago he even lost two teeth while trying to stand up. But luckily he is a very positive thinking little superhero who keeps his chin up and continues discovering his special small world with a big smile on his face.
He loves playing and sitting in the water. A day does not pass pass without getting soaked to the skin. He is absolutely fascinated with fairy lights and loves to open and close doors and drawers. He is our very special sunshine that brightens up every single day.
But still we are frightened about his future. Will there be any cure before the course of disease will be degenerative? Will he come up to walk and talk? His future is written in the stars and genetic research.
MAKE A GIFT
KIF1A.ORG is dedicated to accelerating research to find a cure for superheroes like Lamin. You can help. Treatment is within reach, but there are two obstacles in our way: time and money. Give today to empower KIF1A families to achieve our mission for this generation of KIF1A superheroes.