Emily is a relentless KIF1A superhero from North Carolina. “She has a contagious smile and loves with her whole heart. She works very hard to stay strong while waiting for a treatment or cure for KIF1A.”

A Message from Emily’s Family:

Emily just finished her first year of high school. She loves music, reading, horseback riding, Disney and collecting baby dolls. She has a contagious smile and loves with her whole heart. She works very hard to stay strong while waiting for a treatment or cure for KIF1A. She rarely complains about the numerous therapy and physician visits required to stay on top of her needs related to KIF1A.

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