Emily is a relentless KIF1A superhero from North Carolina. “She has a contagious smile and loves with her whole heart. She works very hard to stay strong while waiting for a treatment or cure for KIF1A.”
A Message from Emily’s Family:
Emily is in her junior year of high school, and we are incredibly proud of all she has accomplished. She loves music, reading, horseback riding, Disney and collecting baby dolls. She has a contagious smile and loves with her whole heart. She works very hard to stay strong while waiting for a treatment or cure for KIF1A. She rarely complains about the numerous therapy and physician visits required to stay on top of her needs related to KIF1A.
