Category: Superhero Stories

Weronika is a sweet child full of energy and smiles, and one of the first children from Poland diagnosed with KIF1A Associated Neurological Disorder.

Noah is an adventurous and resilient eight-year-old from Illinois, USA, and among the first children diagnosed with KIF1A Associated Neurological Disorder.

Jaybriel is a KIF1A superhero from California, USA. His family says “he is our superhero because he has the power to bring out the best in people everyday.”

Abby is a loving and determined two-year-old from Missouri, USA, who was diagnosed with KIF1A Associated Neurological Disorder in January 2019.

Susannah is a KIF1A superhero. Hometown: Harlem, New York Age: 8 years  Baseball All-Star Rockstar sister Never, ever, ever quits

Lily is a KIF1A superhero. Hometown: Alexandria, KY Age: 5 years Loves baby dolls, strollers and her family Toughest yet sweetest girl in town

When a Superhero Falls By Ricardinho Qvistlund, Eleonora’s father Originally published April 11, 2019 (Translated from Swedish) At this night two months ago, you started your way towards the end, the acute condition was too tough for your body and the doctor declared that nothing more was to be done. Mom & Dad took the hardest…

Updated April 2020 Meet Ava, an almost 5 year old superhero who is a strong willed and determined little girl who never gives up and always wears a smile. A Message from Ava’s Family: Ava is an almost 5-year-old gearing up for kindergarten this coming fall! At a pretty young age her parents noticed her…

Caitlin is a KIF1A superhero. Hometown: Northamptonshire, UK Age: 5 years Superhero filled with love and laughter

Sadie is a KIF1A superhero. Hometown: Negaunee, MI Age: Nearly 4 All-Star Wrestler Total Superhero

An Update from Rikki’s Family July 2021 Rikki is almost 9 years old now. She pushes forward everyday. She does not let her KIF1A stop her from participating in everyday obstacles. She has become a big sister as of June of 2020 and is a big help when it comes to taking care of her…