Written in September 2019, Anouk shares her powerful journey from devastation to resilience after her daughter, Lhassa, was diagnosed with KIF1A Associated Neurological Disorder. “You have become my inspiration. My best teacher ever. A philosopher ignoring her talent. You give me the energy to fight for you and other children like you.”
Read MoreWeronika’s Superhero Story
Weronika is a sweet child full of energy and smiles, and one of the first children from Poland diagnosed with KIF1A Associated Neurological Disorder.
Read MoreNoah’s Superhero Story
Noah is an adventurous and resilient eight-year-old from Illinois, USA, and among the first children diagnosed with KIF1A Associated Neurological Disorder.
Read MoreJaybriel’s Superhero Story
Jaybriel is a KIF1A superhero from California, USA. His family says “he is our superhero because he has the power to bring out the best in people everyday.”
Read MoreAbby’s Superhero Story
Abby is a loving and determined two-year-old from Missouri, USA, who was diagnosed with KIF1A Associated Neurological Disorder in January 2019.
Read MoreSusannah’s Superhero Story
Susannah is a KIF1A superhero. Hometown: Harlem, New York Age: 8 years Baseball All-Star Rockstar sister Never, ever, ever quits
Read MoreLily’s Superhero Story
Lily is a KIF1A superhero. Hometown: Alexandria, KY Age: 5 years Loves baby dolls, strollers and her family Toughest yet sweetest girl in town
Read MoreIn Memory of Eleonora – When a Superhero Falls
When a Superhero Falls By Ricardinho Qvistlund, Eleonora’s father Originally published April 11, 2019 (Translated from Swedish) At this night two months ago, you started your way towards the end, the acute condition was too tough for your body and the doctor declared that nothing more was to be done. Mom & Dad took the hardest…
Read MoreAva’s Superhero Story
Updated April 2020 Meet Ava, an almost 5 year old superhero who is a strong willed and determined little girl who never gives up and always wears a smile. A Message from Ava’s Family: Ava is an almost 5-year-old gearing up for kindergarten this coming fall! At a pretty young age her parents noticed her…
Read MoreCaitlin’s Superhero Story
Caitlin is a KIF1A superhero. Hometown: Northamptonshire, UK Age: 5 years Superhero filled with love and laughter
Read MoreSadie’s Superhero Story
Sadie is a KIF1A superhero. Hometown: Negaunee, MI Age: Nearly 4 All-Star Wrestler Total Superhero
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