Matthew’s Superhero Story

Matthew’s Superhero Story

“As Special Needs Parents, we don’t have the the power to make life “fair”, but we do have the power to make life joyful.” A Message from Matthew’s Family: Matthew is almost 4 years old and resides in Chicago, IL. Matty likes music, cake and splashing in baths!

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Lhassa’s Superhero Story

Lhassa’s Superhero Story

Written in September 2019, Anouk shares her powerful journey from devastation to resilience after her daughter, Lhassa, was diagnosed with KIF1A Associated Neurological Disorder. “You have become my inspiration. My best teacher ever. A philosopher ignoring her talent. You give me the energy to fight for you and other children like you.”

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In Memory of Eleonora – When a Superhero Falls

In Memory of Eleonora – When a Superhero Falls

When a Superhero Falls By Ricardinho Qvistlund, Eleonora’s father Originally published April 11, 2019 (Translated from Swedish) At this night two months ago, you started your way towards the end, the acute condition was too tough for your body and the doctor declared that nothing more was to be done. Mom & Dad took the hardest…

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