#Science Saturday: April 2, 2022

#Science Saturday: April 2, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section!

Read More
March 2022 Highlights

March 2022 Highlights

Get those calendars ready! We have some important events and announcements coming your way. It’s also time to catch up on all that’s happened in the KIF1A.ORG community this month and what we’re looking forward to in April.

Read More
#Science Saturday: March 26, 2022

#Science Saturday: March 26, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section!

Read More
Introducing Helping Hand for KAND

Introducing Helping Hand for KAND

Dear KIF1A Community, Equipment deemed medically necessary should never be inaccessible for our friends diagnosed with KIF1A Associated Neurological Disorder (KAND). Thanks to a generous donation made directly to support the creation of this much needed program, KIF1A.ORG can now provide additional support and extend a helping hand to those diagnosed with KAND. What Can…

Read More
#ScienceSaturday: March 19, 2022

#ScienceSaturday: March 19, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section,…

Read More
#ScienceSaturday: March 12, 2022

#ScienceSaturday: March 12, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section…

Read More
#ScienceSaturday: March 5, 2022

#ScienceSaturday: March 5, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section…

Read More
February 2022 Highlights

February 2022 Highlights

This Rare Disease Day catch up on exciting announcements from KIF1A.ORG that strengthen our community and accelerate our path to clinical trials, and meet some of the relentless families who are using their voice to drive awareness and empower progress for the KIF1A and rare disease community!

Read More
KIF1A.ORG Initiates KOALA Study with the Chung Lab to Accelerate Path to Clinical Trials

KIF1A.ORG Initiates KOALA Study with the Chung Lab to Accelerate Path to Clinical Trials

Dear KIF1A.ORG community, On Rare Disease Day 2022, KIF1A.ORG is announcing a new initiative with our collaborators at Columbia University. The KOALA Study will accelerate discovery and development of medicines for KIF1A Associated Neurological Disorder by developing and identifying standardized tools and assessments to support approval of future KAND therapeutics. Since 2017, we have been…

Read More
A Collaboration of Rare + Rare: #ScienceSaturday, February 26, 2022

A Collaboration of Rare + Rare: #ScienceSaturday, February 26, 2022

In anticipation of Rare Disease Day 2022, this week we are featuring a very special collaborative edition of #ScienceSaturday with our friends from the Complex Lymphatic Anomalies community! Our rare diseases may be drastically different, but find out what we have in common and how rare disease communities can drive research for better care and…

Read More