Hello KIF1A Families,
Sloane received her third dose of the ASO on August 1st. We had pre-dose bloodwork, PT evaluation, and research EEG and then post-dose bloodwork, EKG, and research EEG. No substantial motor changes from what we were already seeing with this dose, but we did have one huge milestone this month…Sloane’s first day of school! Right now we are focused on how to maximize what insurance is paying. We will head back to New York in October for Sloane’s fourth dose!
With Hope,
Megan, Sloane, and family