Time is ticking for patients living with devastating rare diseases. On Saturday, October 28th our community joins forces with passionate teams to support patients and fuel research leading to treatments and cures.

The KIF1A Boston Charity Hockey Tournament is not just another fundraiser – it’s a critical opportunity for the community to rally together and fight devastating rare pediatric diseases.

Circle Saturday October 28th, 2:00pm on your calendar. Warrior Ice Arena in Boston, practice facility and home to the Boston Bruins, will be the site of our fun, competitive, and life-changing event. The action begins at 2:00pm with all four teams on the ice and a special performing artist to sing the National Anthem before the puck drops.

Don’t miss your chance to be part of this epic event filled with family activities, former NHL players, and faces you know – all to benefit children with devastating rare diseases.

Who’s Hitting the Ice?

This is far from an ordinary charity event. We’re bringing together teams of first responders from New York and Massachusetts, and professional hockey players from past and present. They’re ready to put their skills on the line and pass the boot for a cause that needs our urgent attention. This competitive tournament features four teams who always answer the call for those who need help most. You’ll get to see each team play two afternoon games and a fierce Championship game at 8pm. This year’s teams are…

  • The Boston Fire Hockey Club
  • Hamptons First Responder Hockey Team
  • The Suffolk County Sheriff’s Hockey Team
  • The Boston Iron Horse Hockey Club

Our Urgent Mission

While the on-ice excitement is sure to attract a great crowd, the true goal of the day is to support the KIF1A Rare Pediatric Disease Program at Boston Children’s Hospital. Led by physician-researcher, and Chief of Pediatrics at Boston Children’s Hospital, Wendy Chung, MD, PhD, this program is at the forefront of the fight against KIF1A and rare diseases.

What is KIF1A? KIF1A is a rare neurodegenerative disease with no cure. Yet. We need your help to turn hope into reality for patients suffering from KIF1A Associated Neurological Disorder. Every penny raised from this event will go directly to the Boston Children’s Hospital KIF1A Program and support clinical trials and cutting-edge research.

We Need Your Help Now!

Every donation, large or small, can make a massive impact. By supporting this event, you’re not just contributing to a special day of hockey and family activities – you’re helping us in our urgent mission to cure KIF1A. From individual contributions to corporate sponsorships, there are numerous ways to step up and make a difference. Make a difference today by clicking below and make a donation to the Boston Children’s Hospital KIF1A Program.

Stand With Us

Whether you’re a donor, an athlete, a passionate community member, researcher, physician or someone who wants to make a difference – we need you with us on October 28th. Let’s join forces on the ice and make a difference. Wayne Gretzky famously said “You miss 100% of the shots you don’t take.” Well, we’re taking every shot on goal to accomplish our mission.

Join the Action All Day

But there’s more! Alongside this incredible hockey tournament, we’ve planned a day filled with engaging family activities, celebrity guests, delicious food, and plenty of surprises. It’s going to be a day to remember, and we can’t wait to share it with you. We need you on the ice!

Check back for daily updates and details.

For sponsorship opportunities please email: Rare.Hockey@gmail.com

**When making a donation please earmark “KIF1A Hockey Event.”