“Emmery lights up every room that she crawls into. Everyone loves her. She’s always been so happy, sweet, and cuddly.”
Read More
#Science Saturday: May 28, 2022
#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More#ScienceSaturday: May 21, 2022
#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More#ScienceSaturday: May 14, 2022
#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More#ScienceSaturday: May 7th, 2022
#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More
Caspar’s Superhero Story
“Our goal above all is to ensure that he has a full and happy life and knows every single day just how important, loved, and amazing he is. Caspar is our rock star and our superhero!”
Read More#ScienceSaturday: April 30, 2022
#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More
April 2022 Highlights
This month we honored our superheroes on KIF1A Day and launched new resources and initiatives to improve the lives of those affected by KAND and accelerate research to find a cure. Read this Monthly Momentum update to learn about our community’s progress in April as we strive for a brighter future for our superheroes.
Read More
Maddox’s Superhero Story
“Our Superhero Maddox brings joy to everyone he meets. His resilience is inspiring, his laughter is contagious, and his gentle heart makes him extremely lovable.”
Read More
Ellie’s Superhero Story
“Our little princess is a perfect example of happiness. She laughs a lot and never complains.”
Read More
Beau’s Superhero Story
“In spite of his challenges, Beau remains a happy, outgoing, and loving little boy. He explores the world with curiosity and wonder.”
Read More