#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More
“Our goal above all is to ensure that he has a full and happy life and knows every single day just how important, loved, and amazing he is. Caspar is our rock star and our superhero!”
Read More#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More
This month we honored our superheroes on KIF1A Day and launched new resources and initiatives to improve the lives of those affected by KAND and accelerate research to find a cure. Read this Monthly Momentum update to learn about our community’s progress in April as we strive for a brighter future for our superheroes.
Read More
“Our Superhero Maddox brings joy to everyone he meets. His resilience is inspiring, his laughter is contagious, and his gentle heart makes him extremely lovable.”
Read More
“Our little princess is a perfect example of happiness. She laughs a lot and never complains.”
Read More
“In spite of his challenges, Beau remains a happy, outgoing, and loving little boy. He explores the world with curiosity and wonder.”
Read More
“Gunnar’s big smile and even bigger heart, relentless determination to get up no matter how many times he falls, and refusal to let KIF1A keep him down make Gunnar unstoppable.”
Read More
“She will allow no obstacle to stop her from accomplishing her goals and we are proud of her every day.”
Read More
“Her laugh and smile are infectious- you can’t help but join her!”
Read More