February 2022 Highlights

February 2022 Highlights

This Rare Disease Day catch up on exciting announcements from KIF1A.ORG that strengthen our community and accelerate our path to clinical trials, and meet some of the relentless families who are using their voice to drive awareness and empower progress for the KIF1A and rare disease community!

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KIF1A.ORG Initiates KOALA Study with the Chung Lab to Accelerate Path to Clinical Trials

KIF1A.ORG Initiates KOALA Study with the Chung Lab to Accelerate Path to Clinical Trials

Dear KIF1A.ORG community, On Rare Disease Day 2022, KIF1A.ORG is announcing a new initiative with our collaborators at Columbia University. The KOALA Study will accelerate discovery and development of medicines for KIF1A Associated Neurological Disorder by developing and identifying standardized tools and assessments to support approval of future KAND therapeutics. Since 2017, we have been…

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A Collaboration of Rare + Rare: #ScienceSaturday, February 26, 2022

A Collaboration of Rare + Rare: #ScienceSaturday, February 26, 2022

In anticipation of Rare Disease Day 2022, this week we are featuring a very special collaborative edition of #ScienceSaturday with our friends from the Complex Lymphatic Anomalies community! Our rare diseases may be drastically different, but find out what we have in common and how rare disease communities can drive research for better care and…

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#ScienceSaturday: February 19, 2022

#ScienceSaturday: February 19, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section…

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#ScienceSaturday: February 12, 2022

#ScienceSaturday: February 12, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section…

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#ScienceSaturday: February 5, 2022

#ScienceSaturday: February 5, 2022

#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section…

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CZI Awards KIF1A.ORG $150,000 and Another Year of Rare As One

CZI Awards KIF1A.ORG $150,000 and Another Year of Rare As One

Hello KIF1A.ORG Community, We’re starting Rare Disease Month with fantastic news! The Chan Zuckerberg Initiative (CZI) awarded KIF1A.ORG an additional $150,000 in capacity-building funds and the critical opportunity to engage with the Rare As One Network for one more year! Thank you CZI for partnering with the KIF1A community by including us, investing in us,…

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January 2022 Highlights

January 2022 Highlights

Happy New Year! We are diving right into 2022 by announcing our newest member of the KIF1A.ORG team! Also, get to know one of our key partners within the KIF1A Research Network and keep up to date with the latest right here in January’s Monthly Momentum update.

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#ScienceSaturday: January 29, 2022

#ScienceSaturday: January 29, 2022

#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Volunteer Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.

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Meet the 2021 KIF1A.ORG Mini Grant Recipients!

Meet the 2021 KIF1A.ORG Mini Grant Recipients!

Dear KIF1A.ORG Community, Small roadblocks should never halt therapeutic discovery. That’s why we created KIF1A.ORG’s Mini Grant initiative to support smaller direct project expenses that can accelerate our path to treatments for KIF1A Associated Neurological Disorder. In 2021, we awarded three mini grants for the following novel projects led by members of our Research Network. Learn…

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