April 2022 Highlights

April 2022 Highlights

This month we honored our superheroes on KIF1A Day and launched new resources and initiatives to improve the lives of those affected by KAND and accelerate research to find a cure. Read this Monthly Momentum update to learn about our community’s progress in April as we strive for a brighter future for our superheroes.

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Gunnar’s Superhero Story

Gunnar’s Superhero Story

“Gunnar’s big smile and even bigger heart, relentless determination to get up no matter how many times he falls, and refusal to let KIF1A keep him down make Gunnar unstoppable.”

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Rylie’s Superhero Story

Rylie’s Superhero Story

“Rylie is independent, stubborn, silly, and of course the happiest! She loves making everyone around her smile, and feel loved. Her laugh is contagious, and she loves to share it with everyone.”

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Liam’s Superhero Story

Liam’s Superhero Story

“Through Liam, our family has learned how to come together in new ways and love even more than we thought we could. We have all had to learn how to live life with a special needs child and brother. What a gift and a blessing. We are thankful for Liam’s smile, laughter, and brilliance.”

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