“She is the strongest, toughest person we know! She does almost all of it with a smile that lights up the room.”
Read MoreRylie’s Superhero Story
“Rylie is independent, stubborn, silly, and of course the happiest! She loves making everyone around her smile, and feel loved. Her laugh is contagious, and she loves to share it with everyone.”
Read MoreBrandon’s Superhero Story
“Even after countless therapy appointments, doctor appointments, procedures and surgeries, he takes on each day with his contagious smile and laughter.”
Read MoreLiam’s Superhero Story
“Through Liam, our family has learned how to come together in new ways and love even more than we thought we could. We have all had to learn how to live life with a special needs child and brother. What a gift and a blessing. We are thankful for Liam’s smile, laughter, and brilliance.”
Read MoreLa historia de superhéroes de María
“Maria es muy valiente, hace submarinismo, ha hecho surf y pàdel surf, natacion y hasta ha escalado recodromos, ha montado a caballo, … le encanta el agua, es mi sirena. Es empàtica, sociable y luchadora.”
Read MoreBrayden’s Superhero Story
“Brayden has never met a stranger and is loved by everyone. His great sense of humor, baby blue eyes and his contagious smile always melt your heart.”
Read MoreAraya’s Superhero Story
“Amidst the many struggles that she has endured in her short life, she continues to spread her strength and light to the world!”
Read MoreMalasia’s Superhero Story
“Amidst the many struggles that she has endured in her young life, she continues working hard to attain the things that appear just out of reach, physically and figuratively. Her determination is one of her greatest strengths!”
Read MoreResearch Roundtable Community Summary: April 25, 2022
KIF1A.ORG’s 17th Research Roundtable meeting, “A new KAND barometer: The number of KIF1A molecules needed for axonal transport” was presented by Dr. Kumiko Hayashi at Tohoku University in Japan.
Read More#ScienceSaturday: April 23, 2022
#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research and highlight progress in rare disease research and therapeutic development.
Read More#ScienceSaturday: April 16, 2022
#ScienceSaturday posts share exciting scientific developments and educational resources with the KAND community. Each week, Dr. Dominique Lessard and Dr. Dylan Verden of KIF1A.ORG summarize newly published KIF1A-related research. From February 5 – April 16, 2022, a team of talented students from Columbia University’s M.A. in Biotechnology program is taking over the Rare Roundup section!
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