KIF1A.ORG hosted the largest gathering of KIF1A families, researchers, clinicians and supporters at the KAND Family & Scientific Engagement Conference on August 16–17, 2019, at Columbia University in New York City.

We believe in making the latest KIF1A research and data freely and easily accessible. Download the conference agenda, and click the session titles in the menu below to view session recordings and access presentation slides, handouts and group notes captured during the conference. We thank our global community of families, researchers, clinicians and supporters for making the 2019 KAND Conference possible.

Download Agenda

Day One Presentations & Activities

Our True North

Scientific Progress

Clinical Care & Education

Day Two Presentations & Activities

Your Story & Perspective

Table Topics

Clinical Trials & Therapeutics

World Cafe: Advancing Progress in the KAND Community

Group Notes Coming Soon

Group Notes Coming Soon

Group Notes Coming Soon