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Hello Friends

As the end of this year draws nearer, we are fueled and ready to steer into our end-of-year impact! Will you join us? Find out more in this Monthly Momentum update.

Are you ready to translate hope into action? Join us this year for #GivingTuesday, a global movement of giving on November 30, 2021! Be sure to mark your calendars and share this movement across social media to help the KIF1A.ORG community reach new heights on #GivingTuesday. Donations made through Facebook on November 30th could even be matched!

Research Highlights


#ScienceSaturday posts are available to share relevant and exciting scientific news with the KAND community. If you’d like to stay informed about the latest KIF1A research and other interesting news happening within the science and rare disease worlds, check out our blog each week.

Get to Know Our Research Network

In case you missed any of our featured Research Network members, this month we’re rewinding to the beginning of this year when we first introduced “Get to Know our Research Network” segment so you can catch up!

Dr. Simran Kaur
Research Officer, Brain and Mitochondrial Research Group Research Fellow, Department of Paediatrics, The University of Melbourne
Dr. Douglas Chapnick
Founder and CEO of BioLoomics
Troy Collins Headshot
Troy Collins, PhD Student
Lab Member, Silverman Lab, Simon Fraser University
Dr. Ajay Chitnis
Senior Investigator and Head of Section on Neural Developmental Dynamics at National Institutes of Health, Division of Intramural Research
Hans Christinger, MBA
KIF1A.ORG Board Member
Aileen Lam
First Year Osteopathic Medical Student, Pacific Western University of Health Sciences
Headshot of Dr. Dominique Lessard
Dr. Dominique Lessard
Chief Science Officer at KIF1A.ORG
Dr. Niwa headshot
Dr. Shinsuke Niwa
Principal Investigator of Niwa Lab & Associate Professor of Frontier Research Institute for Interdisciplinary Sciences (FRIS) at Tohoku University

Community Highlights

Research Engagement Director Update

We are moving forward in our search for the newest member of KIF1A.ORG’s team. We expect to announce our selection for KIF1A.ORG’s Research Engagement Director in November!

Coping Box Project Update

Living with KAND is HARD, but thanks to a grant-funded opportunity awarded to our friends at Ryan’s Case for Smiles through Phillies Charities, Inc., KIF1A superheroes have extra support and comfort the next time they face a medical procedure, surgery, or an injury. Since our coping box partnership began this year, we have been able to provide 19 boxes to KIF1A families. If you haven’t heard about this partnership yet or you want to request a box for a KIF1A superhero and their family, read more here.

Chik-Fil-A for KIF1A

#TeamBryce came together at their local Chik-Fil-A to raise funds for KIF1A.ORG. So far, they have raised $1,510.58!! Thank you all who came out to support this fundraiser!

The KIF1A.ORG Store Is Open

Is it too early for holiday shopping? We don’t think so. Check out the KIF1A.ORG store on Bonfire to grab a tee or sweatshirt and support our mission!

To keep up with the progress we’re making thanks to your support, sign up for our monthly newsletter and emails!

Whatever role you play in our community, we need you. Thank you for all that you do to help us realize our mission for KIF1A superheroes everywhere.

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