Meet Cam S, an 15-year-old boy from Ohio whose family spent 10 years searching for a correct diagnosis.

A Message from Cam’s Family:

Cam was diagnosed with KIF1A in May of 2019. We spent over 10 years being diagnosed with Cerebral Palsy. It wasn’t until Cam started to regress in his mobility and everyday skills, that we found the correct diagnosis. KIF1A has made walking independently a struggle, his vision is impaired and he has delays in development.

Cam is relentless, stubborn and determined. He loves his tablet, coloring, going on adventures, baking and fire trucks.

We hope to see a cure for all of our kiddos! Our kids deserve to progress in life and have a future.

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