KIF1A

Please join us on Wednesday, August 22nd at 7:00pm for a special performance of Love Letters, by AR Gurney. Sally Jackson and Luke Rosen return to the stage for one night only in a production to benefit the Center for Rare Pediatric Genetic Diseases. 


All proceeds from this performance support the 
TREATMENT program within the Center for Rare Pediatric Genetic Diseases at Columbia University Medical Center led by Wendy K. Chung, M.D., Ph.D. Dr. Chung and her colleagues are moving at a rapid pace to integrate advanced clinical care with cutting-edge research to identify the rarest and often previously unknown conditions, and to develop novel, individualized treatments for each patient. The program is giving hope to families who have had nowhere else to go and epitomizes how Columbia Children’s Health is leading the field of Precision Medicine. 
 
With your generosity, we will continue to bring compassionate, personalized care informed by ground-breaking research to our young patients, many of whom are the sickest of the sick.


For more information or inquiries, please contact: impact@KIF1A.org


Production History

In February, 2004, Sally Jackson and Luke Rosen first performed Love Letters as a benefit for Broadway Cares: Equity Fights AIDS at the Acorn Theater in New York City. The show was a success, so every year Luke and Sally performed this magical play for audiences supporting various causes and charities. Over the years the show raised awareness and money for organizations such as The Harlem Children's Zone, New York Public Library, The Y, Actor's Fund, and The Northfield Mount Hermon School.


In 2016, Sally and Luke's two-year-old daughter, Susannah, was diagnosed with KIF1A Associated Neurological Disorder (KAND), a rare genetic disease. Susannah was one of only a handful of children in the world known to have this neurological condition. With the support of Wendy Chung and her team, the family formed KIF1A.ORG, a foundation dedicated to supporting research leading to treatment for children like Susannah. Since 2016 over 100 individuals and families diagnosed with KAND have found a community and are playing an active role in discovery.


On August 22nd, Sally and Luke return for one more performance, this time to shine the light on all children affected by rare genetic diseases and to ask for your help in supporting the Center for Rare Pediatric Genetic Diseases at Columbia University Medical Center. 


About Love Letters 

Love Letters is about a fifty-year love affair carried on primarily through letters, written in and about a world where letter-writing was very much an essential mode of communication, especially between men and women. This Pulitzer Prize-winning classic, covers the decades-long relationship between Andy and Melissa. Reading the lifetime of letters they exchange, we follow them through the years. Love Letters will surely stay with you long after you leave the theater.


Love Letters

by AR Gurney

A special performance benefitting the Center for Rare Pediatric Genetic Diseases at Columbia University Medical Center

Wednesday, August 22nd at 7:00pm

​Roy and Diana Vagelos Education Center at Columbia University

​104 Haven Ave, New York, NY 10032​​