“What we have once enjoyed we can never lose. All that we love deeply becomes a part of us.”Helen Keller
A Message from Evie’s Family:
Evie was the 4th child in our family. She was the light of our lives with a smile that would light up a room and a laugh that was infectious. My mom always said Evie talked to angels and when she left us, the light went out of our lives. After she left us, my eldest daughter Isabelle, got in touch with Luke Rosen and Dr. Wendy Chung and figured out a way for Evie to live forever. Through her donation, she can be studied and maybe some questions can be answered. Evie is our superhero!!!
The entire KIF1A community is forever grateful for Evie’s gift. She lives on through our mission, and we will remember her always.
Make a Gift
We honor Evie’s memory by continuing our relentless mission to find a cure for KIF1A Associated Neurological Disorder. Gene therapy and drug development are within reach, but there are two things preventing us from finding that cure: time and money. You can make a gift to support our mission in Evie’s honor.