KIF1A.ORG Welcomes Dr. Dylan Verden to the Team

KIF1A.ORG Welcomes Dr. Dylan Verden to the Team

Dear KIF1A.ORG Community, Please help me extend a warm welcome to Dr. Dylan Verden, KIF1A.ORG’s new Research Engagement Director! Dr. Verden will be a driving force of KIF1A.ORG’s efforts to engage our diverse community of stakeholders—spanning from patients and caregivers to clinicians and scientists—who are working relentlessly to accelerate the path to treatments for KIF1A…

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The Year in Review: 2021

The Year in Review: 2021

What a year! As families, scientists, doctors and our friends around the world navigated the challenges of 2021, the KIF1A.ORG community worked together to reach new heights this year. We are so excited to highlight our proudest achievements in 2021 and what refuels and restores our drive for 2022. Together, we’re going to change the…

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Presentamos KIF1A.ES / Introducing KIF1A.ES

Presentamos KIF1A.ES / Introducing KIF1A.ES

We are thrilled to announce the launch of KIF1A.ES, a member of the KIF1A.ORG family in our mission to improve the lives of those affected by KIF1A Associated Neurological Disorder and accelerate research to find a cure. KIF1A.ES, or Associación KIF1A España, is a proud part of the KIF1A.ORG community that will help drive collaboration,…

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September 2021 Highlights

September 2021 Highlights

Are you ready for this month’s recap and a sneak peek look into what’s happening next for the KIF1A.ORG community? Get the latest RIGHT HERE in this Monthly Momentum update.

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KIF1A.ORG Now Hiring for a Research Engagement Director

KIF1A.ORG Now Hiring for a Research Engagement Director

Dear KIF1A.ORG community,   The last time I wrote a blog post about expanding the team at KIF1A.ORG, I talked about the remarkable growth our community had generated. We needed to build KIF1A.ORG’s capacity to keep that momentum moving forward. A year later, this is even more true today.  

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August 2021 Highlights

August 2021 Highlights

Meet KIF1A.ORG’s new Treatment Accelerator Program partner, view our latest resources, and get a recap of all things KIF1A in this Monthly Momentum update!

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NeuCyte Joins KIF1A.ORG’s Mission to Accelerate Therapeutic Discovery

NeuCyte Joins KIF1A.ORG’s Mission to Accelerate Therapeutic Discovery

KIF1A.ORG Community, Earlier this week, we announced NeuCyte as the first partner of KIF1A.ORG’s Treatment Accelerator Program to fast-track therapeutic discovery for KIF1A Associated Neurological Disorder (KAND). This collaboration will make significant leaps in our understanding of KAND and drug discovery capabilities. Because the KIF1A.ORG community rallied to fund this initiative, we’re able to make…

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July 2021 Highlights

July 2021 Highlights

Yes, it’s that time of the month already! It’s hard to believe almost a month has passed since we had the opportunity to “see” so many of our friends at the KAND Conference. Great updates then, and more updates now! Scroll on to see the latest!

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Conference Updates and June 2021 Highlights

Conference Updates and June 2021 Highlights

We have a special edition of Monthly Momentum for you with Pre-Conference presentations from our therapeutic development collaborators available for you to watch now! We are blown away by all that has transpired over the last 6 months and what is still to come for the rest of 2021. The KIF1A community has experienced growth…

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BioLoomics Partners with KIF1A.ORG to Find Life-Saving Therapeutics for KAND

BioLoomics Partners with KIF1A.ORG to Find Life-Saving Therapeutics for KAND

KIF1A.ORG Community, We are thrilled to introduce you to BioLoomics, a new partner in our urgent mission to find treatments for KIF1A-Associated Neurological Disorder (KAND). BioLoomics uses their technology to speed up therapeutic discovery and yield promising drugs that cannot be found through traditional approaches. As we work relentlessly to outpace the ticking clock of…

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May 2021 Highlights

May 2021 Highlights

What a month! In May we surpassed our $100,000 USD fundraising goal to accelerate KAND therapeutic development, introduced a new partner: Good Dogg Beverage, welcomed Summer Interns, opened the KAND Conference registration, and even more. Learn more about the progress we’ve made in this Monthly Momentum update.

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