Two quote bubbles feature the KIF1A.ES logo and "Hola!"

We are thrilled to announce the launch of KIF1A.ES, a member of the KIF1A.ORG family in our mission to improve the lives of those affected by KIF1A Associated Neurological Disorder and accelerate research to find a cure. KIF1A.ES, or Associación KIF1A España, is a proud part of the KIF1A.ORG community that will help drive collaboration, research and family support in Spain and across our Spanish-speaking community.

As a global community of patients, families, researchers, clinicians and supporters, the KIF1A.ORG family is united in our shared mission. We believe no child or adult should lose their skills, abilities or even their life to a neurodegenerative disease that can be treated if we all work together to advance research while providing the support and care families deserve until we discover the cures they need.

Through KIF1A.ES, we look forward to strengthening family support and engagement while cultivating collaboration in the medical and scientific community in Spain. We thank Alejandro Doval and Maribel Saez, as founding parents, and all the families behind KIF1A.ES and their dedication to serving the growing KIF1A community. While the launch of KIF1A.ES marks our official presence in Spain, these families have long been working side-by-side with KIF1A.ORG to advance our mission. To learn more, visit!

Warm regards,

Kathryn Atchley
President, KIF1A.ORG


  1. 1
    Lorenzo Alonso on November 17, 2021

    Congratulations. Together we will achieve our goal, a cure for the disease.

  2. 2
    Maribel on November 19, 2021

    Mucha suerte para kIF1A en España y Europa.

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