Dear KAND Community! We are thrilled to announce the recent publication of two KAND Natural History Study articles! We invite everyone to read the articles and learn about the latest data on KAND symptoms. We sincerely thank all the participants and researchers whose contributions have been crucial in reaching these advancements in KAND knowledge and…
Read MoreKIF1A.ORG is a global community dedicated to improving the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerating research to find a cure.
Treatment Accelerator Program Fundraising Update
Please be a hero to our superheroes and donate to our TAP fundraiser so we can test promising therapeutics for KAND!
Visit our TAP webpage for more details and follow along as we reach our goal of $70,000!
KIF1A.ORG Featured in Ken Burns Documentary: The Gene
The KIF1A.ORG community was recently featured in “The Gene: An Intimate History”, a film about how scientists, doctors and patients are unlocking the power of science to diagnose and treat genetic diseases. Now more than ever, our world is looking to pioneers and innovators to accelerate scientific breakthroughs that will improve and save lives. Part One of The Gene highlights the relentless KIF1A.ORG community and our mission to find a cure for KAND. Visit our webpage to see a few exclusive clips!
Our Impact
0
+
people diagnosed with KAND
$
0
+
raised to advance our mission
0
+
countries represented
On the Blog
Conferences
KIF1A.ORG has had the privilege of supporting both in-person and virtual conferences with our scientific and family community members. These events offer a unique opportunity for all stakeholders to come together and connect. For many researchers, it is often their first time meeting a KAND patient face-to-face. Similarly, for families, it is frequently the first…
Read More