#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
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KIF1A.ORG Community, KIF1A.ORG is excited to expand our pipeline of therapeutic development projects for KIF1A Associated Neurological Disorder (KAND) through our partnership with Rarebase. Rarebase is a public benefit corporation pioneering a new approach to biotech by partnering with patient communities like ours. They share our sense of urgency and optimism in today’s science to…
Read More#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
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Special Edition! February 28th is Rare Disease Day! Check out this Monthly Momentum update from KIF1A.ORG to see what is happening around the world to spread awareness and recognize those living with a rare disease. We are gearing up for major success this year that is both mission-focused and community-driven. Our pathway to treatment is…
Read More#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley, Science Communication Associate Aileen Lam and Chief Science Officer Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
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“My only hope for Allen is that the world sees him as the superhuman that he is.”
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“Kylie is the brightest and purest of lights. She is so full of spunk, energy and determination. Kylie has a smile that lights up a room and everyone in it. She helps us find laughter and inspiration in every day moments both happy and challenging.”
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“Anderson is the personification of determination. He can charm anyone with this sweet, endearing grin, and his silliness never ceases.”
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“He is our warrior hero and the definition of perseverance!”
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“His big, toothy grin lights up a room, and his determination is nothing short of a warrior!”
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To date, roughly 300 individuals have been diagnosed worldwide with KIF1A Associated Neurological Disorder (KAND). These three families have three very important things in common: their children’s diagnosis, gene variant, and location!
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