From KIF1A.ORG June 28, 2021June 28, 2021

We have a special edition of Monthly Momentum for you with Pre-Conference presentations from our therapeutic development collaborators available for you to watch now!

We are blown away by all that has transpired over the last 6 months and what is still to come for the rest of 2021. The KIF1A community has experienced growth in new collaborations and partnerships, and many newly diagnosed families have joined the fight to change the fate of KAND. Let’s keep the momentum going!

Pre-Conference Presentations Now Available

Before the KAND Family & Scientific Engagement Conference on July 9 & 10, view updates from Rarebase, Ovid Therapeutics, BioLoomics, and Murdoch Children’s Research Institute, in addition to special content created by KIF1A.ORG to help you prepare for the conference. Visit KIF1A.ORG’s 2021 KAND Conference Playlist on YouTube and check back as more videos are added this week!

View Presentations!

Send Us Your Questions for Q&A with Our Therapeutic Collaborators!

After you’re done watching the presentations from Rarebase, Ovid Therapeutics, BioLoomics, and Murdoch Children’s Research Institute, send us your questions! On July 10, we’ll address your questions with our therapeutic development collaborators!

Submit Your Questions!

KIF1A.ORG’s 2021 Virtual Conference Registration Is Still Open!

Our virtual conference is almost here! There is still time to register for the event. Click the button below to register. Can’t wait to “see” you there!

Research Highlights

New Core Collaboration: BioLoomics

We are thrilled to introduce you to BioLoomics, a new partner in our urgent mission to find treatments for KIF1A-Associated Neurological Disorder (KAND). BioLoomics uses their technology to speed up therapeutic discovery and yield promising drugs that cannot be found through traditional approaches. As we work relentlessly to outpace the ticking clock of neurodegeneration, we are grateful to the team at BioLoomics for joining our mission to bring treatment to this generation of people affected by KAND.

Community Highlights

KIF1A in the News

Thank you to these relentless KIF1A families for sharing your stories to advocate on behalf of the entire KIF1A community!

Emma’s Story

Kamloomps News: Kamloops Parents of Child With Rare Genetic Condition Move to Calgary For Therapy

Turner’s Story

Turner photo — 9 News: Glenwood Springs Child Suffers From Rare Neurological Disorder Without a Cure or Treatment

Colbie’s Story

The Oconee Enterprise: Family Advocates for Daughter with Rare Disease

Whatever role you play in our community, we need you. Thank you for all that you do to help us realize our mission for KIF1A superheroes everywhere.

Let’s Do This

Let’s make 2021 the year we bring life-changing and life-saving treatments to our superheroes. It’s a bold and extraordinary goal, but along with your help, we are up for the challenge!

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Conference Updates and June 2021 Highlights