Category: Monthly Momentum

The month of May was full of momentum! Our partners at Columbia University Irving Medical Center are now enrolling patients in the KOALA Study to advance KAND research and therapeutic development! Families: check out this newsletter to find out how to enroll and learn about how KIF1A.ORG can support your travel to New York City…

This month we honored our superheroes on KIF1A Day and launched new resources and initiatives to improve the lives of those affected by KAND and accelerate research to find a cure. Read this Monthly Momentum update to learn about our community’s progress in April as we strive for a brighter future for our superheroes.

Get those calendars ready! We have some important events and announcements coming your way. It’s also time to catch up on all that’s happened in the KIF1A.ORG community this month and what we’re looking forward to in April.

This Rare Disease Day catch up on exciting announcements from KIF1A.ORG that strengthen our community and accelerate our path to clinical trials, and meet some of the relentless families who are using their voice to drive awareness and empower progress for the KIF1A and rare disease community!

Happy New Year! We are diving right into 2022 by announcing our newest member of the KIF1A.ORG team! Also, get to know one of our key partners within the KIF1A Research Network and keep up to date with the latest right here in January’s Monthly Momentum update.

Are you ready to translate hope into action? Join us TOMORROW for #GivingTuesday, a global movement of giving! Every donation goes directly to research to find treatments for KIF1A Associated Neurological Disorder. Check out November’s Monthly Momentum update to learn more about our progress thanks to your support.

As the end of this year draws nearer, we are fueled and ready to steer into our end-of-year impact! Will you join us? Find out more in this Monthly Momentum update.

Special Edition! TODAY is KIF1A Day! Check out this Monthly Momentum update from KIF1A.ORG to see how our community is driving progress and how YOU can be the hero that our superheroes need.

We are gearing up for major success this year that is both mission-focused and community-driven. Our pathway to treatment is the compass leading the way. Join us each month as we spotlight our monthly momentum and impact!

Special Edition! February 28th is Rare Disease Day! Check out this Monthly Momentum update from KIF1A.ORG to see what is happening around the world to spread awareness and recognize those living with a rare disease. We are gearing up for major success this year that is both mission-focused and community-driven. Our pathway to treatment is…

Welcome to our newest initiative of 2021! We are gearing up for major success this year that is both mission-focused and community-driven. Our pathway to treatment is the compass leading the way. Join us each month as we spotlight our monthly momentum and impact!