September 2022 Highlights

September 2022 Highlights

As this month comes to an end, we look ahead into the last few months of 2022 with hope, enthusiasm, and drive. You can join us by catching up on our mission-focused and community-driven progress right here in this Monthly Momentum. Also, be sure to mark your calendars for 2023’s in-person KAND Family & Scientific…

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August 2022 Highlights

August 2022 Highlights

This month we gathered our community at the 2022 KAND Family & Scientific Engagement Conference to share updates, connect, and learn from one another. In August’s Monthly Momentum newsletter, catch up on conference presentations, meet core members of the KIF1A Research Network, and learn about new resources and opportunities with KIF1A.ORG!

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July 2022 Highlights

July 2022 Highlights

It’s not too late! Register today for KIF1A.ORG’s virtual 2022 KAND Family & Scientific Engagement Conference. You can also view our latest resources and get a recap of all things KIF1A right here in this Monthly Momentum update!

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June 2022 Highlights

June 2022 Highlights

Registration for the virtual 2022 KAND Family & Scientific Engagement Conference is now open! We invite you to join in on the excitement by ordering your conference t-shirt and exploring this month’s highlights to learn about the conference agenda and how to register, as well as other important reminders. 

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May 2022 Highlights

May 2022 Highlights

The month of May was full of momentum! Our partners at Columbia University Irving Medical Center are now enrolling patients in the KOALA Study to advance KAND research and therapeutic development! Families: check out this newsletter to find out how to enroll and learn about how KIF1A.ORG can support your travel to New York City…

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April 2022 Highlights

April 2022 Highlights

This month we honored our superheroes on KIF1A Day and launched new resources and initiatives to improve the lives of those affected by KAND and accelerate research to find a cure. Read this Monthly Momentum update to learn about our community’s progress in April as we strive for a brighter future for our superheroes.

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March 2022 Highlights

March 2022 Highlights

Get those calendars ready! We have some important events and announcements coming your way. It’s also time to catch up on all that’s happened in the KIF1A.ORG community this month and what we’re looking forward to in April.

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February 2022 Highlights

February 2022 Highlights

This Rare Disease Day catch up on exciting announcements from KIF1A.ORG that strengthen our community and accelerate our path to clinical trials, and meet some of the relentless families who are using their voice to drive awareness and empower progress for the KIF1A and rare disease community!

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January 2022 Highlights

January 2022 Highlights

Happy New Year! We are diving right into 2022 by announcing our newest member of the KIF1A.ORG team! Also, get to know one of our key partners within the KIF1A Research Network and keep up to date with the latest right here in January’s Monthly Momentum update.

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November Highlights

November Highlights

Are you ready to translate hope into action? Join us TOMORROW for #GivingTuesday, a global movement of giving! Every donation goes directly to research to find treatments for KIF1A Associated Neurological Disorder. Check out November’s Monthly Momentum update to learn more about our progress thanks to your support.

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October 2021 Highlights

October 2021 Highlights

As the end of this year draws nearer, we are fueled and ready to steer into our end-of-year impact! Will you join us? Find out more in this Monthly Momentum update.

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