Our Miles that Matter fundraiser is BACK in 2026!!
Race Info
Will You Join Us for Miles That Matter for KIF1A?
This February, we’re challenging ourselves—and each other—to complete 28 miles (or more!) by February 28, 2026, in honor of Rare Disease Day!
KIF1A Associated Neurological Disorder (KAND) can prevent some of our children from ever being able to move, and those who can face the possibility of losing that ability over time. It’s one of the many devastating symptoms of KAND, which is why…
WE DON’T TAKE A SINGLE STEP FOR GRANTED.
As parents, caregivers, and supporters, it’s vital that we stay strong. This Rare Disease Month, we’re on a mission to honor our KAND warriors by raising awareness and supporting critical research to find effective treatments and, one day, a cure.
You can complete your miles however you choose—walking, running, cycling, or any way that feels right for you. Every mile matters, and it’s all about moving forward. We hope to inspire everyone to join us in this journey!
When you register you can join an existing team, create a new team, or participate as an individual.
Can’t join the challenge but still want to make an impact? Donations and support for our mission are always greatly appreciated.
Let’s move forward—one step, one mile, one goal at a time!
Merchandise
You can also purchase 2026 Miles that Matter swag to support our cause, and clock those miles in style! A small portion of each sale is donated to KIF1A.ORG. Check out some of the styles below!
Spread The Word!
You can also encourage others to join our event by sharing this website or printing this 5×7 inch postcard using them to invite your neighbors, friends, coworkers, classmates, local businesses, or on community event posterboards.
Share your photos
We invite you to visit our public Google Photo Album to view photos from other participants and upload your own! It’s a wonderful way to see how teams and individuals are completing their 28 miles in creative and inspiring ways.
By uploading photos, you consent to having them included in the public album and grant KIF1A.ORG permission to use them for marketing and promotional purposes.
Can you spot someone walking on the beach?
Maybe trekking through the snow?
Using a wheelchair or riding a bike?
Or even swimming their miles?
Show us how you completed your 28 miles—we can’t wait to see your photos!
We may be rare, but together we are strong! Thank you to everyone who is participating and encouraging others to join!
