KIF1A.ORG hosted the 2025 KAND Family & Scientific Engagement Conference in Boston, Massachusetts July 25-26, 2025. Thank you to the KIF1A.ORG community of patients, families, scientists, clinicians, biotech leaders, and supporters who gathered together to hear the latest updates in research, therapeutic development, and from our patients and families!
Together we share the same mission: to improve the lives of those affected by KIF1A Associated Neurological Disorder (KAND) and accelerate research to find a treatment and cure!
Conference Highlight Video
Group Photo on Day 1
Below you will find the session recordings and presentation slides in the order they were presented. You can also find these presentations on our YouTube Playlist. Whatever role you play in our community, we are grateful for you. Thank you!
Sloane’s Mom
Assistant Professor of Neurology
Columbia University Irving Medical Center
Susannah’s Dad
Co-Founder, KIF1A.ORG
Norah’s Mom
Emma’s Mom
Co-Founder of SpineX
Mother of Emmery
Thank you to Novartis for sponsoring our KAND Conference.
And a special thank you to our research network partners for supporting our community and mission at KIF1A.ORG!
