An Update from Rikki’s Mom
Rikki is now 7 years old! She is our family fashionista! She loves fashion, dressing up, traveling, singing, and adventure! She has a great imagination and is the most caring and giving friend. She loves school, especially recess with her friends!
A Note From Rikki’s Family
Rikki is 4 years old. We have had the diagnosis for about a year now. She loves superheroes, princesses (especially Belle!), Yanni music, and swimming! She is very brave (she falls a lot, but always gets back up and tries again). She is full of life and doesn’t let her disability stop her from having a great time in whatever she does!
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KIF1A.ORG is dedicated to accelerating research to find a cure for superheroes like Rikki. You can help. Treatment is within reach, but there are two obstacles in our way: time and money. Give today to empower KIF1A families to achieve our mission for this generation of KIF1A superheroes.