We’re excited to gather the KIF1A.ORG community of patients, families, scientists, clinicians, biotech leaders, and supporters at the 2022 Virtual KAND Family & Scientific Engagement Conference on August 13! At the 2022 KAND Conference, you’ll see the latest in KAND research and therapeutic development, learn about common KAND symptoms and care considerations, interact with members of the community, and hear from the experts: KAND patients and families.

Thank you to our sponsors for making the 2022 Virtual KAND Family & Scientific Engagement Conference possible!


Agenda

All times are in Eastern Daylight Time, New York City, UTC-04:00

11:00 a.m. – Noon | Pre-Conference Networking & Technical Assistance
Join us early for open networking & technical assistance from our tech team if needed!

Noon – 12:10 p.m. | Welcome & Why We’re Here

12:10 – 12:25 p.m. | We Remember

12:25 – 12:30 p.m. | Meet Our Superheroes – Part 1

12:30 – 1:30 p.m. | Columbia University KAND Study Update & Q&A

1:30 – 2:00 p.m. | #ThisIsKIF1A – Family Panel Discussion

2:00 – 2:40 p.m. | Social Time: Breakout Tables

2:40 – 2:50 p.m. | Break & Networking

2:50 – 3:00 p.m. | KIF1A.ORG Video Premiere

3:00 – 3:30 p.m. | Spasticity & KAND

3:30 – 4:00 p.m. | Vision & KAND

4:00 – 4:20 p.m. | KIF1A.ORG’s Therapeutic Development Strategy

4:20 – 5:40 p.m. | Therapeutic Development Updates

5:40 – 5:45 p.m. | Meet our Superheroes – Part 2

5:45 6:00 p.m. | How You Can Advance KAND Therapeutics


Register for the 2022 KAND Conference!

Name*
You'll use this email address to access the virtual event on our online platform, Remo.
Where are you from?*
Are any family members, colleagues, etc., attending the virtual KAND Conference with you? (This will help KIF1A.ORG estimate how many attendees will be joining us.)
What is your role in the KIF1A.ORG community?*
check all that apply