October 18, 2015–February 14, 2019
From Eleonora’s family:
Princess with beautiful and magical blue eyes. A brave Superhero who never complained despite major challenges. An ambassador for pure love, justice and positive change.
You left us on Valentine’s Day, as if you wanted to give us an important message.
Eleonora … your imprint on earth is great despite your too short life, the world will always remember you!
Read this tribute from Eleonora’s father and listen to their story to learn more about this superhero family.
Make a Gift
We honor Eleonora’s memory by continuing our relentless mission to find a cure for KIF1A Associated Neurological Disorder. Gene therapy and drug development are within reach, but there are two things preventing us from finding that cure: time and money. You can make a gift to support our mission in Eleonora’s honor.