Sonny is five years old and is from Sheffield, UK. His mom shares: “The future is so uncertain for anyone with KIF1A; that’s why it’s so important that the research continues for our son’s future.”
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Caitlin’s Superhero Story
Caitlin is a 7-year-old from Northampton, England. Her mother says, “She makes our hearts burst with pride at her resilience.”
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Evie’s Superhero Story
“What we have once enjoyed we can never lose. All that we love deeply becomes a part of us.” Helen Keller
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Matthew’s Superhero Story
“As Special Needs Parents, we don’t have the the power to make life “fair”, but we do have the power to make life joyful.” A Message from Matthew’s Family: Matthew is almost 4 years old and resides in Chicago, IL. Matty likes music, cake and splashing in baths!
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Josie’s Superhero Story
Josie is a #relentless KIF1A warrior from Washington, D.C. who loves spending time with her family and friends.
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#ScienceSaturday: April 25, 2020
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley and Science Communication Director Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
Read More#ScienceSaturday: April 18, 2020
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley and Science Communication Director Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
Read More#ScienceSaturday: April 11, 2020
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley and Science Communication Director Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
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Ionis Joins the KIF1A.ORG Mission
We are relentless. Today that “we” continues to grow.
Read More#ScienceSaturday: April 4, 2020
#ScienceSaturday posts share relevant and exciting scientific news with the KAND community. This project is a collaboration between KIF1A.ORG’s Research Engagement Team Leader Alejandro Doval, President Kathryn Atchley and Science Communication Director Dr. Dominique Lessard. Send news suggestions to our team at impact@kif1a.org.
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KIF1A.ORG Rejects Discriminatory Ventilator Allocation Protocols and Calls for Immediate Action
A PDF of this statement can be downloaded here. The KIF1A.ORG Leadership Team is closely monitoring reports that governments and medical institutions will soon be implementing catastrophic and discriminatory pandemic ventilator allocation protocols, preventing life-saving access to ventilators.
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