Members of Congress,
We are waiting for NIH funding, but our children who are battling a rare neurodegenerative disorder are running out of time. The continuing resolution that the NIH is currently operating under harms the rare disease community by blocking critical funding for scientific research. We need you to pass a full-year budget that includes an increase in NIH funding.
For more information about how the continuing resolution harms scientific advancement that families like ours depend on, read statements from the American Society of Human Genetics and Research!America.
Members of Congress, let’s talk. Contact us today to learn from your constituents before making a decision that affects the lives of millions of Americans living with a rare disease.
The KIF1A.ORG Leadership Team
Kathryn Atchley, Parker’s Mom
Luke Rosen, Susannah’s Dad
Shannon Scott, Sadie’s Mom
John Siemer, Lily’s Dad