Please note….

All times are listed in Eastern time (either EDT or EST depending on the time of year).

When registering for the Zoom link, the time shown should sync to your local time.

  • Newly Diagnosed Meetup

    These gatherings are open to anyone that is new to our community or any KAND families interested in learning more about our organization’s mission, staff,…

    Thursday, September 25, 2025 12:30 pm – 2:00 pm Eastern Time Zone
    Online via Zoom
  • 4th Quarter Community Call, KIF1A.ORG

    Join us each quarter to dive into current community events, exciting research opportunities, scientific updates, and more! Your participation is essential, and we truly value…

    Thursday, November 13, 2025 12:30 pm – 2:00 pm Eastern Time Zone
    Online via Zoom